Feeling overwhelmed

Hi Samantha, I can in a way understand where you mind and emotions are at.  In 2020 I was having the same symptoms for a while but I kept saying it was just a water/kidney infection as was a similar pains I had previously which turned out to be a kidney.  How wrong I was.. eventually it got too much so on the Friday I finished work and my friend took me to the a&e department, this was during covid..one of the reasons I kept putting it off...anyway it's a good job I did and that two angels in the ultrasound department took it upon themselves to do my scan a little lower.  As I had ovarian and womb cancer, I had a 23cm tumor on my right ovary.  I had to have a full hysterectomy and 6 rounds of chemo.  I then kept getting pains even up until my results finally said things had worked.  But two years in with not a lot of support from GP etc I still have them feelings and thoughts that it has come back or spread to somewhere they don't check for...and I really do feel for you ...it is horrible waiting for them results..try to console yourself with that you have done everything that you can or that has been asked off you and it is amazing what medicine and positive thinking can do together...just tell yourself as much as you can..no matter what you can get through all of this..you are strong to be where you are..

Did they explain the source of your pain? I've had almost nothing since healing from surgery and now I have constant abdominal and lower back pain and recently some bleeding too. If they tell me my scans are fine, I think I'll be just as frustrated. My gp suggested it was irritable bowels from chemo. 

Hi guys

Sad reading your posts

I have been through most things related to ovarian cancer and the rubbish it throws at us

Since my gp told me my ca125 was 2580 and the cause most likely ovarian cancer I never saw them again for anything to do with the cancer, if I have a concern I always ring my specialist nurse and if it is something to be concerned about she got a Dr to ring me,

Waiting for results is a nightmare, I'm Currently going through treatment for recurrence,  I have had 4 cycles of chemo so far, 5 has been deferred 3 times so far as I'm neutrapenic, neuraphil is still below 1

My ct scan results last week show the chemo isn't working tumors have grown 9% not massive amounts but still in the wrong direction

I will continue with last 2 cycles when the bloods allow and get another scan and see what my options are then,

I have had period like pains for about 2 months when I mentioned this at my appt on Monday nothing was said what I could be. It's not crippling pain but it is there constantly.

Speak to your nurse if you have concerns or just need a bit of reassurance 

I say keep positive but understand sometimes it's draining and when people say ah look how far you've come I personally want to scream x

Hi noggins, I am so sorry to hear it is not the news you would like concerning tumours, was you in remission for while. I'm sorry to ask but this is my main worry.  Did you have an hysterectomy and still had recurrence? It's only because it all confuses me as I had a full hysterectomy wether I can actually have womb and ovarian cancer  again...also I too have had constant back period pain for nearly two years as I'm going through early menopause due to my operation, at 42 this as totally affected my life.  But like you said noggins I do try to stay positive too but now and again it is hard...I really hope yourself and Samantha get the good news you both need and deserve 

I had ultra radical debulking surgery  total hysterectomy omentum peritoneum lymph nodes bowel resection now have stoma, 

I wasn't in remission but was no evidence of disease  for a short while, I was diagnosed aggressive stage 4,

Now recurrence is in abdominal wall stoma site and 2 others around same area, but it is still called ovarian recurrence 

I was already going through menopause since Sept 2019 diagnosed Feb 2021

You may have symptoms cos you have been forced into menopause 

But I would ring your nurse leave a msg if you have to and they should ring you back, where do you live, I'm nottingham based

Take care x

Hi

i haven’t been on the chat for months now. I’m so sorry things aren’t going great for you. Last time we spoke you’d been in Cyprus!

I didn’t make my holiday to Rhodes. Was admitted  on the night everyone flew out would you believe. After two clear scans but a rising ca125 it finally showed up. Blocked my bowel and ended up with an emergency stoma op!! Hospital for 5 weeks with kinks in my bowel etc etc. Started chemo weekly to make it more manageable but the stoma is a pure nightmare and reacting badly to chemo and weekly gives me no time to get pulled around before it’s time for another.

Feel like I’ve stepped up to another level with this hideous disease, felt for weeks like there was no light ahead and worry now it’s going to be existing not  living!!! 

Tomorrow is another day, maybe things will seem a bit brighter!!!

Take care of yourself huni x

Omg, I'm so sorry to hear all you have/are going through, sometimes it doesn't rains it pours! and what can we do but put brolly up and get on with it, and as you say hope the sun comes out tomorrow! I just want to send love and let you know we/I totally understand how you feel, you do start to question why, and worry what will be. I'm exactly the same! As you can see still awake at 4:00!!! X

Ahh so nice to hear from you!! 
Things can just go so wrong so quick it feels!! My daily treat that helps now is a solero, lol 

Hoping you are well at the moment and making most of the summer days x

Hi ladies

Diney that is rubbish news, so sorry my love

Stomas are a hard thing to accept and get used to

If you have trouble with leakage due to chemo i was told to eat marshmallows and jelly sweets

I have struggled with chemo again, cycle 5 was deferred 3 times eventually got it last tues but at 60% , 1 left to go and its not working anyway, there has been no shrinkage but there is growth, im not overly unwell but my middle is very heavy,

Im not sure what my options will be after chemo is done another scan and wait n see.

Do you have ileostomy, i always went to bed with a towel when i first had mine, so if accidents happened i had something at hand , still have accidents niw and again,

They tell you nit to eat allsorts, i eat everything except sweetcorn and seeded bread.

If i can help answer any questions please ask

Thake care Pam x

Hi Pam

Yes it’s an ileostomy so high output and very watery. On 6-8 loperamide a day atm with codiene to try and thicken but the chemo is killing it, and me!!!! It’s swollen so badly at the weekend I had to go to larger bags and am so scared how big it’s going to go!! Waiting to hear from the stoma nurse. I think it may have gone down a bit but I feel so stressed at the thought of changing the bag with no one around, struggling atm!!!!!

 
Im so sorry the chemo isn’t shrinking your tumours, it’s all just so awful, chemo is bad but at least if it does the trick it makes it worth it, can’t imagine how you feel when it’s not!! 

There are just no words:(

Big hug for you xx