Hi.i just want to give a bit of background. I live with my mum and granny. My granny had dementia and my mum cared for her. My mum is engaged but doesn't live with her fiance due to her caring commitments.
Just before Christmas she told me she had a cyst. She said there was no tumor markings but that it needed removed as was very big.
She told me as precaution they were doing a full hysterectomy. She went in last Monday. She got put at 4pm on Wednesday last week and her mother my granny died at 5pm.
While I was sad about my granny I was happy that my mum can finally live her life. I was to bring her to her follow up appointment today from the surgery. She hasn't told anyone until this morning but after the surgery the doctor told her it was cancer.
So hit with that shock we went to her appointment. The doctor told us it was stage 3 ovarian cancer. He said when he removed her ovaries etc he could see bits of cancer all through the area and some of it was in the sack that Contains your organs and some might be in bowel.
Obviously I was devastated for my mum and she's so amazing and tries to put on a brave face for me and focus on the positives.
It'd hard to take in it all but doctor said it's not something that goes away. She will be dealing with it the rest of her life. He said it all depends and everyone is different.
He said it depends on how you respond to chemo. He said about 80% of people respond to it.
I have been reading online since this and I'm not sure if that's a good or bad thing to do. Some things I've read is
That for stage 3 ovarian cancer. 42% of people live more than 5 years. Others say 34%
I guess my first question is how do I separate that figure into responding to chemo and not responding. If you don't respond do you love 6 months if you do respond can you live 10 years?
I have no idea how long my mum is likely to live. I really want her to be around for my wedding. I've no dad and no brothers and sisters and she's all I have.
I take heart reading stories on here. Some of you who have cancer seem so strong and positive and she is too.
I just need some hope. I don't know if it's wishful thinking to hope she responds well to chemo goes into remission and is alive in 10 years.
I've read stories and figures that say that there is a slightly under 20 % chance if you go into remission your cancer won't return but the doctor said she will be living with it her whole life which he couldn't give a time on.
Does this mean my mum has a type that can't be got rid off?
I also read that if the chemo works. Most ovarian cancer returns within about 6 months.
Does this mean for how ever long she has left she will be constantly getting chemo etc
I know everyone is different and I don't want to be lied too and want the truth but I really could use some good news.
Thanks
Good morning lovemymum! .. firstly how strong and wise you sound I bet your Mam is glad to have you in her corner and secondly I am sorry you have been through some bad times... As to Mams cancer each of us are different in dealing with treatment but on the whole we do manage to get through it, I was diagnosed with stage 4b oc 2021, had op, and chemo and today I'm feeling great, yes it was and still is a scary time, like you I read all these statistics of expectd life of 5 years after diagnosed and I to have searched for a good story of someone living over 10 years plus, just to give me hope, however, they do seem hard to find. So I say I will be that person! I will be the fairytale ending!! I'm sure your Mams doctor will get the chemo right and she will respond well (as these doctors are blumming marvelous) then she will go onto maintenance treatment, yes she will go through alot with chemo but when all done you forget the bad days and appreciate the good ones! I am sending you and your Mam good vibes, the battle is on and your Mam sounds like a true warrior! Good luck!!!
Oh definitely I enjoy life probably more than pre- overian cancer as now I realize I'm lucky that I have had chemo, operation and now tablets, I am regularly monitored bloods, etc., and so far so good.. my last chemo was August, I had my CT scan this week and of course I am worried about recurrence and I probably will before every scan that's to be expected, anxiety sets in but it is what it is.. I do believe I will beat this but in the meantime I fake it till I make it!!! Being positive is definitely the way to go and believe in your medical team.
I take 2 tablets daily, bloods checked regularly to check I am tolerating them.. Honestly I am feeling great, sometimes I do get tired but I just say " Netflix day" and take time for me I don't worry ironing needs done are stairs need hovered I listen to my body, I don't feel guilty for spoiling myself.... I have a hubby and two grandchildren who have lived with me from babies so I have a good support group around me and they have busy lives so at times I do forgot I've got this horrendous disease... Hope this helps both you and mum, we are all stronger than we think... Much love.
That's amazing my mum broke down this morning but due to the positive stories on here I was able to reassure her.
It's great that you are able to enjoy your life. That's all I want for her. I didn't want her sick from chemo or recovering from operations constantly.
The next few months will be hard. Did you get the normal chemo or did you get any of the clinical trial Chemo like the hipec?
Aww you are fine, I have been told from previous scan: Stable appearance...my chemo was: carboplatin & Paclitaxel. Hopefully this scan will say the same but don't get results for a couple of weeks.
Tell your Mam it's good to cry, it will take time to come to terms with... X
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007