Debulking op

Hi hollybud I had my operation March 2021. Like you I was quite shocked to hear all the things which could go wrong. However we don't have much choice, do we? I was told op. could take between 8 to 10 hrs. The anesthetist said they called the op. 'the full monty'. After the op. you will be put in HDU where you are monitored 24hrs. so any problems will be quickly picked up. It's no good me saying don't worry because of course you will. We all do. However I thought I would be in pain afterwards and honestly I was uncomfortable but I never had any real pain.

Good luck I hope everything goes well for you.

Morning!! Thank you so very much for telling me this!.. I did not do very good on the bike test, which I feel was a bad thing, then to hear the Long list of compilation well I was floored, I know with any operations there comes risks but I felt the risks this time were bespoke to me...so now you say you felt the same has indeed helped!. I do count myself lucky to be in a position to have the operation but these scary thoughts have got inside my head and are running wild... I'm so pleased to hear you seemed to get through the op relatively smoothly, can I ask what stage you were and age..I'm stage 4b and 60.... and how are you doing now?

Many thanks.

I was stage 4b and 68 when I had my operation. I am feeling 'normal' again now. I get tired easier but I don't spend every minute thinking about cancer. Yesterday was exactly a year since I started taking Niraparib. You are nearing the end now so hang in there and look forward to a well earned rest.

Morning.. just to see how you are! I did get through op as you said with no real issues (thanks again), I to I'm taking Niraparib, only 3 weeks but fingers crossed they help me too! All the very best! Ann.

Hello, sorry it has taken so long to reply. I was on holiday when I got this........and then forgot!

I am so pleased you are finished treatment now and are feeling better. You will have reached the tricky part with Niraparib now so I hope it is still going fine.

The parp nurse phoned today and I am still doing ok.

If you have any questions I will be glad to answer them as I know how we are all desperate for any help and positivity.

Take care

Hi, thanks for reply! You are so right I'm looking for some reassurance, I keep thinking ' what if Niraparib doesn't work for me' as my ca125 has been rising while I am taking them? Parp nurse has more or less said it could be down to dead cells, however, I have had a lot of back pain so extra worry.  I know I have to say ' you are living with cancer but all's good for now' I suppose it's early days for me yet, I have had a MRI scan on back so fingers crossed that's ok and puts my mind at rest.. I am so pleased and inspired that you are ok and enjoying life,. Did you have this kind of anxiety? 

"Did I have this sort of anxiety?" I still do! Normal aches, pains, and headaches are not normal anymore and always raise a 'what if.' However this is a way of life now.

I also have back pain if I stand and walk for too long. It was a lot worse but is improving now. Surgeon said this is because of things moving around due to spaces caused by op.

I don't look at forums and do searches now but it took a long time to put all this behind me and try to move on. So give yourself time.

Good luck with your scan.

Aw what you are saying is exactly what I am feeling, it is indeed our 'norm' I suppose. I do say c'mon you are here and try to get on but uncertainty in always niggling away, mind you in a strange way knowing you are the same makes me think 'well I'm not alone ' hopefully my results give me some peace and I can try and enjoy Christmas we just have to put our happy faces on! All the very best to you and yours! We could be the ladies who have a fairytale ending and we will be around for many many Christmas to come, I'm sure our angel will get us through this!!! Love Ann.