Here goes 12 yrs ago I had one ovary removed due to borderline tumour then 3 years ago I had surgery to remove everything, saw the consultant every 3 months then 6 monthly , all my blood tests came back normal, then one day I woke up and I was bleeding ( I have no cervix ) I was so scared I called the hospital and spoke to oncology nurse who got me in to see my consultant the following day.
After more blood test which all came back normal , I had scans ct pet scan which showed I had 2 tumours one inside at the top where my cervix was and one attached o my iliiac vein .
I was booked in for surgery before that I was told I only had one kidney 
I’m 57 and did not know this.During surgery they found another tumour attached to my urethra so another surgeon was called to deal with it as that was the most important one it was between my kidney and bladder.
Results came in I had low grade serous carcinomas
After surgery I went through chemo pacllitaxel and carbo.which apparently my cancer is chemo resistant.
so up to date I am 1 year post op and 7 months post chemo, I went back to work and I see 2 consultants every 3 month, one who has said I’m in remission.
Now my problems and worries are causing me so much anxiety I keep having emotional breakdowns where I am unable to go to work.
Low grade serous ovarian cancer is slow growing and I secrete the protean markers that show up in your blood so my ca125 always comes back normal, so it does not matter what bloods I have or what the oncologist says. He has said I will not know it’s back until I am symptomatic.this makes me feel like a ticking time bomb worrying when the next tumour will come back and where it will come back.
People say just live your life but it’s so hard to do that when every pain or twinge scares me what do I do nobody can give me answers as their are no answers, they don’t scan , which I am begging for at the moment to help me feel a little better arrrgggg I’m so frustrated.
sorry for the long rant
Hi Kitana
I don't have the same type of cancer as you but I do understand the worry of not knowing if the cancer will come back or not.
Although I'm currently being treated for breast cancer, 5 years ago I was diagnosed with malignant melanoma. The melanoma was removed and there were no signs of cancer cells in the sentinel lymph node biopsy. Follow-ups consist of skin checks every 3 months for 5 years as they do not scan unless it is discovered that the cancer has spread.
I found that over time I began to recognise the twinges as just that, a twinge I wouldn't have even given a second thought to pre-cancer, However, it took me a while to get to that place.
Sending a big (((hug)))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
