Suspected ovarian cancer..

Hi JANEBEE80 and welcome to the Online Community. I just dropped by, I have a different type of cancer to you and noticed you've not yet had a reply. I'm sure the ladies here will be along to reply soon.

Unfortunately the 2WW seems to become the norm in our lives - the wait for an appointment, then 2 weeks for the results. Then another 2 weeks for the next test so we do know how you're feeling, you're not alone in this so I'm sending you a cuddle and hug.

Why not read through some of the posts here and just reply to some on them, there's not etiquette, you don't have to be invited! LOL

Sending hugs, B xx

Hi Janebee80

1. Hi I thought I would reply as I am in the same situation as you, I have a large mass on my right ovary, they have told me they are not sure if it's cancer.I have an operation on the 26/04/22 for a full hysterectomy, I have waited 6 weeks and now it's coming closer I can't stop crying or thinking the worst. The wait is horrendous.I hope you get a diagnosis soon, always here if you want to talk about anything. Xxxxxxx

Hi Summer22, sorry to hear of the situation you are in.  Very much like me back in October last year. 

I hope they intend to check some of your pelvic lymph nodes during your operation.  Do you know if they will?  Also I had my omentum removed too (thankfully no cancer was found there though).  Will you be having your omentum removed too?  

Thinking of you and JANEBEE80 during this difficult time for you both.  

Hi 

Hi Sarah16

Thanks for your reply, they are taking everything including the omentum.Did you have a total hysterectomy? I am very nervous about the operation next week but really do want the mass out its quite big and causing me to be uncomfortable, also have some fluid which is worrying.I hope you are feeling better than you did Sarah16.xxxx

Yes, I had a total hysterectomy (the scar is healing nicely from my pubic bone to above my belly button).  

I was a little nervous on the morning of the operation but they really do put you at ease.  Remember they do so many hysterectomies.  

I have recovered really well following my hysterectomy and am feeling much better thank you.  If you click on my profile it will tell you more about my diagnosis.  Perhaps when you get chance you might want to update your profile it really does help as I sometimes see posts and people assume I know their history which I don't and then I click on their profile and there is no information there.  

Hi Janebee,

I just wanted to answer your question re the CA125 level, in my case my reading was 35. But I had a mass 17 x9 ,mostly fluid and had a total hysterectomy including omentum….had a look at lymph nodes and they seemed fine. The sack had a tiny hole and after histology came back as 1c mucinous ovarian cancer.

advised to go for bib and braces approach of 6 x chemo every 3 weeks….My CA125 went done to 7 post surgery and 5 after chemo…and I have been clear …cancer free since last July.

Take it in stages, trying to cope with everything is too much too take in and deal with….once your plan is in place it will get easier ,but yes the waiting is very difficult….try to maintain a healthy diet, drink water and light exercise if you can …there are success stories and positivey….the doctors only goal is to make you well….it’s a marathon not a sprint , a real roller coaster of emotions, fears… dig deep and try to talk to someone but only when your ready

best wishes

Sue x

Thank you Sarah for your reply, I will complete my profile that way people will know where I am at in this journey although I won't know for sure its cancer till they operate.I am so glad you are healing well and you have put my mind at rest regarding the op so thanks for that.

Assuming things go according to plan (a big assumption), after three rounds of chemo I will have a similar surgery - removing all ovaries, uterus, omentum, peritoneum, and lymph nodes. I hope that your sugery goes very smoothly and you recover well. Please keep us updated when you can. xo