I had an ovarian cystectomy due to ovarian torsion a few weeks ago, I thought they would be mature teratomas (dermoids) as I've had so many of those in the past. Found out recently it was an immature teratoma (a rare malignant germ cell tumour <1% of all teratomas). I'm so lucky that they just found it by accident. I had a Ca125, AFP and HGC a few weeks before the op and all came back normal, I guess these tests aren't that effective without diagnostic imaging. They only took that one in there and left the two other growths in there, they're probably dermoids but I'm sure they will cut me open again and take those out of me too now given the new risks.
Have my first follow up appointment with my gynae on Tuesday. To be honest I am shitting bricks, I don't really know anything about the grade of it or metastasis or what. I'm hopeful that things will be fine, but this waiting is making me go loopy.
I haven't heard anything from the docs. Part of me thinks that's a good thing, but at the same time I've been left in the dark and this is the scariest thing I have ever been through, even if it's a near miss its really shaken me. Can't help but feel like the standard has been set for my care in the future after being left in the dark for 2 months.
Can anyone else relate to this?
