Hi, My world has fell apart again !.
waited 6 weeks to get back on taxol after recent scan revealed OC growth in all areas. My platelets have been dropping each week , now down to 56 . I have been feeling unwell , lots of bruising , night sweats , headaches . My bloods have been tested , I had to push for this as I was getting desperate waiting around , knowing something wasn’t right.
Ive had an emergency bone marrow aspiration, it’s looking highly likely I have Leukaemia, which has been brought on by chemo . I’ve had carboplatin , pacitaxol, doxorubicin and rubraca maintenance for the last 6 months on and off.
I am totally gutted , we sign the green forms knowing we have 1% chance of getting this side effect, but never think it will happen . Has anyone been in this situation ? I haven’t a clue what will happen next. How can my body deal with 2 cancers at one time . X
Hi Deblorraine, and so sorry to hear your latest news .
As you say, we all understand when we sign up for these treatments that there are small groups of people who have a bad reaction, or for whom they just won’t work…..but we hope we’ll get a break of luck after everything we’re already going through, and for once, just be one of the “normal” rather than “special” ones.
Can’t pretend I have any answers for what happens next I’m afraid, but as someone graded 2b, who after surgery and chemo going well ended up in the 30% of people with platinum resistant cancer, and in the even smaller group who have a recurrence within 3 months, I can certainly sympathise with the feeling of wanting to be part of the majority for who things run smoothly for a change.
I hope your oncologist will be able to provide some answers and alternatives for you - meanwhile be thinking of you,
love Bxx
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