Hello, I’m new

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hello, I’m new here and am hoping to find some positive feedback. My Mum has been diagnosed with stage 3C ovarian cancer. She has 2 cysts, one on each ovary. My Mum had a hysterectomy back in her early 40’s she is now 68. My Mum has had a stent fitted as the cyst was pushing on her kidney and was becoming inflamed so she had to have it fitted as they wouldn’t be able to give her treatment seeing as the kidney wasn’t functioning properly. The stent is giving her a lot of discomfort, burning and going for a wee every 20 minutes, my mum is really upset and uncomfortable all the time. Today she saw her gynie, he was really very lovely and put his arm around her, the first person she has seen which hasn’t been cold, I’m sorry to be negative but her oncologist is a bit of a robot which isn’t helpful when you’re feeling low. The gynie said her bowel is running through the cyst/tumour and he’s concerned she may have to have her bowel removed. Also he said she has fluid round her heart. I’m worried about this, it sounds alarming. My Mum is going to have 3 rounds of taco/carbo then hopefully if it’s shrunk down she will have an operation to remove the cysts then 3 more rounds of chemo. My Mum is really struggling with the thought of losing her hair. She wanted to try the cold cap but her oncologist said it’s pointless as won’t work. Any feedback is really appreciated. 

  • I can't help regarding diagnosis. However if it is paclitaxel and carboplatin your Mum will be getting I can tell you the cool cap does work and she should persist if she wants to try the cap. From personal experience I can say when you are feeling completely down to look in the mirror and not be bald is a massive boost.

  • Hi,

    sorry to hear about your Mum - and I agree with Newmay 100.%. I also had 6 cycles of Carboplatin/Paclitaxel using the cold cap, and managed to keep my hair. It’s a little thinner than it used to be but with the right cut and hair products I still feel confident when I go out or look in the mirror. She should persevere if this will help her face what she has to go through.

    wishing you both the best of luck,

    Bx