Need some positivity!

  • 4 replies
  • 31 subscribers
  • 981 views

Hi all

 I was diagnosed stage IV last year, following chemo and surgery I’m now in remission and on Avastin as maintenance. I’m approaching my last cycle of that, following which I’m told I just go onto ‘self monitoring’, which of course scares me to death.  Having been strong now for so long,  I’m struggling now with what the future may hold (and whether in fact I might have any future).  Of course I’m aware it’s incurable, and the odds are high of a recurrence but can I dare to hope that I’ll get a few years before then? And that more chemo might see it off again?

i get so down every time I hear in the news of another celebrity dying of cancer - I’d really like to hear some more positive stories to give me some hope.  Following diagnosis is it really just a downhill battle  to the inevitable decline, or can there be some quality of life before it finally gets us?  Would love to hear from anyone who’s got some positive experience following a stage IV diagnosis - hoping there is someone out there...!

  • FormerMember
    FormerMember

    Bless you, its so blooming hard isn't it.  If its any use, I was stage 3a in 2009 with clear cell.. had 2 relapses since, was told it will keep coming back, quickly and scattered, however I've been clear since  2014, so who knows what's gonna happen!

  • Thank you, that’s just what I need to hear - there is hope.   so glad to hear you’re doing well. Clear for 7 years - that’s so fab! Best of luck to you

  • Hi Riki, 

    I’m at the same stage as you - last cycle of Avastin due in two weeks, following a diagnosis of stage IIIc OC in January last year. I’ve been so looking forward to this point but am finding myself increasingly anxious about what comes next. There has been a strange comfort in following the treatment path through the three weekly blood tests, consultations and chemos, then Avastin infusions. I have been told I will have a CT scan and then three monthly blood tests at first, I forget what comes after that - I’m happy to look to the near future and go from there one step at a time. 

    Best wishes and take care, Nell xxx

  • FormerMember
    FormerMember

    Hi,

    My mam is in the same situation. She had her last round of chemo yesterday, and will start maintenance therapy in a month. They couldn’t get all the cancer in surgery-but she’s reacted very well to the chemo.

    I’m anxious for the future, and I’ve been reading other women’s personal accounts of their diagnosis and treatment. There are some hopeful and positive stories here:

    https://mnovarian.org/portfolio-posts/

    I hope this provides some positivity. I wish you all the very best and many, many happy years to come. Treatments are developing and improving all the time.

    xxx