Back in November 2020 I was hospitalised with sepsis! I have had extensive gynea issues! I have had CIN3, VIN3 and I also have stage 4 deep infiltrating endometriosis! I had an abscessed mass! A mass that had abscessed, not an abscess that caused a mass! I was given antibiotics and discharged from hospital with the follow up being to rescan at 6 weeks to make sure the infection had gone? No idea why 6 weeks! Anyway I got messed around by the NHS, and was just about to be forced to wait a further 6 weeks on top of the 6 weeks I was supposed to wait, to end up at GAU, where I was given an ultrasound that showed a very complex mass! I went straight to MDT that week and was called in the following day! The plan is full hysterectomy and removal of at least this ovary. Nothing has actually been said, other than, this is what I need..... Which is great, ok sign me up! BUT then I was told I have to go for an emergency MRI, back to MDT then they’ll contact me to organise this treatment they have already deemed I need?
So my MRI is Tuesday! All I know is my consultant is going to phone me after the MDT! I don’t know if it’ll be the Thursday after the MRI, or the following week! The C word has not been used! In fact, nothing has been explained to me! My cancer markers are normal, which I know can mean I don’t have cancer, or I still could have cancer!
What I’m asking, are the hospital assuming cancer? Is that why they’ve already got a treatment plan in place? But, if it is, why are they awaiting further scans? It’s all confusing! Thankfully my Endo specialist is also an oncologist, so I’m under a surgeon that knows me well.. As surgically, I am a very complex case *frozen pelvis*
Hi and a very warm welcome to the online community
It sounds like you've had a great deal to contend with over the last few months and it's no wonder you're feeling frustrated with everything.
It sounds like after the original MDT meeting it was decided that another MRI was needed. Hopefully, the team involved will then have enough information when they next meet to put a concrete treatment plan in place. It would also be at this point when they'll be able to tell you if they've found cancer or not and what treatment you'll be having.
I know how horrible waiting for test results can be so try to divert yourself in the meantime. I know that's easier said than done with the current restrictions but do you have any interests you can pursue at home or can you arrange virtual coffee mornings with friends over Skype, etc?
Do come back and let us know how you get on
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
