Hi, I’ve been directed to this group, this is my mums story so far;
She visited her GP 3 weeks ago about what she thought was an allergy to feather resulting in an cough and a slight sickly feeling in her tummy, this resulted in bloody tests and a quick referral for a chest and tummy CT scan. 2 days later a phone call for her GP advising possible lung and ovarian cancer. Further referrals to chest clinic and gynaecology, broncoscopy and EBUS followed by ultra sound scan. She has now been referred to gynaecology cancer unit for a 21cm complex mass and she has an appointment on Wednesday with chest consultant but she received a letter yesterday stating;
Metastic invasion, T4, N3 and M1c, while this doesn’t mean anything to my mum I’ve researched it and it doesn’t sound positive.
I’m just numb and not really sure how best to support my mum, any advice would be welcomed, thanks for reading xx
So sorry to hear about your Mum, but very glad she has you to support her through these difficult times.
From my experience, the worst parts of the early days of my cancer journey were how quickly it burst in and disrupted my life, the uncertainty of what the diagnosis and treatment plan might be, and trying to manage the emotional rollercoaster of feelings - all at the same time as feeling very uncomfortable and often in pain.
Just having family and friends there to support me through it all was amazing - sometimes what I needed was a positive “it’ll be ok” message to get me through, other times, more of an ear to listen to all the “what if’s” going round in my head, and a shoulder to cry on.
Wishing you and your Mum every strength to get through this together,
Bx
Thank you so much for replying, it is the what ifs and what nexts and like you say the speed it has entered her life. I wish you all the best and lots of love on your journey and thanks again for replying xx
Thanks for your kind wishes - and hope your Mum will find, as I did, that once the medical team has a plan in place for her, she feels more able to cope with the “what nexts” - and I’ve definitely found it helps to focus on each step as it comes rather than trying to have all the answers at once. Also, doing what I can in terms of keeping physically and nutritionally fit for my procedures and treatments, and keeping away from Google and other sources of outdated advice. So much is happening in this field all the time, it’s so important to keep faith with the medical experts.
Would love to hear how you and your Mum get on if you feel like posting again,
love Bx
Hi B.positive, my mum and me saw the consultant on Wednesday and Macmillan nurse, the cancer is advanced in both lungs, liver and bones. She is due to see oncologist on 2/3, mum is accepting of what they’ve said, me not so because she’s my world, I’m just trying to be as supportive as possible and keeping my fears and tears for my hubby.
I hope you are ok and staying well during this awful time.
Much love x
Very sorry to hear the update on your recent meeting with the chest consultant, and I hope that your meeting with the oncologist on 2/3 brings some reassurances about ongoing treatment options for your Mum.
Having lost my own Mum to lung cancer at age 83 I remember how hard it was staying strong for her at the same time as feeling inside that the world I had always known was falling apart. It’s great that you have your husband to support you, as I did too.
Looking back now, I feel the most important things during that difficult time were making the most of every moment of quality time we were able to share, always being in “her team”, and respecting her decisions and wishes about ongoing treatments (even if they weren’t always aligned with what I would have wanted personally).
I’m so thankful with regards to my own ovarian cancer that it was caught early and that I’m now 1/4 of the way through chemo and finding it do-able.
I wish you both lots of love and strength for the journey ahead.
Bxx
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