Mucinous boarderline tumour

Hi Dannichef

That's great news that your mass turned out to be benign but I can understand why you're finding the thought of 6 monthly check-ups a hard thing to process.

I was diagnosed with malignant melanoma 4 years ago and had 3 monthly check-ups for the first 3 years and I'm now on 6 monthly check-ups for two years. Like you, the thought that they might find something each time I went was very real but, with time, this has diminished. I suppose that although I'm very aware that the melanoma could reappear at any time I've come to terms with it and don't let it spoil my life.

Unfortunately, there's no magic way to get to this acceptance it's just something you have to work through in whatever way you find helpful. A lot of people find mindfulness really useful and, if this is something that appeals to you, clicking here will take you to the NHS page on mental health apps which you can download.

I have also had a look in this group to see if I could find previous posts which mention mucinous borderline tumours. Clicking here will take you to what I found. You could have a read through them and respond to any of the posters who you think might be able to help you further.

I noticed that you also posted this in the ask a nurse section of the online community and wondered if you'd seen the reply. If not, clicking here will take you straight to it.

I hope you have a relaxing and enjoyable Christmas.

x

Hi Dannichef

I had a mucinous adinocarcinoma which started as a borderline tumour while I was pregnant. It was removed when I had my c-section and pathology came back three weeks later as malignant. I had a full hysterectomy including both ovaries and because they think it started there and didn’t leak or spread I’m apparently recovered but still have checks with my oncologist every 3 months, although no scans. 

I hope that the fact mine did turn cancerous and I’m still here and fine gives you some comfort. I’m now on estrogen patches as my body doesn’t produce it’s own hormones anymore and I can’t have any more children obviously (I’m 35).

I know exactly what you mean about feeling guilty. I feel like I’m not a “proper cancer survivor” because I never had to go through chemo or anything like that, and that I should be happy and live my life to the full, being grateful I’ve been given a second chance. Some days I feel like this, but other days I just feel so anxious. I’m constantly convinced it’s reoccurring and have pains and sensations that send me into a panic. What I’ve learned though is that this is a normal response to such a shock. People don’t expect to get ovarian cancer in their 20s and 30s and dealing with that is hard. I feel like myself and my husband have PTSD because we both get so worried when there are any kind of symptoms or health concerns.

Allow yourself to feel how you feel and know that whatever you feel is normal for someone going through a shock. We are both lucky but it’s ok to also feel unlucky sometimes to have even had to go through it.

Hear to talk if you ever want to.