Hi,
I have a meeting tomorrow after the MDT and want to make sure I get all the information I need. I have written down some questions but just wondered if you have any advice at all please. Because I cannot take my husband it's just my little brain to absorb all the info!
Here’s my little story!
I had a large dermoid cyst removed from an ovary 21 years ago whilst I was pregnant with my 3rd daughter. There was never any mention of it being anything other than dermoid and I was never worried about it really. It was found on an early pregnancy scan.
During the start of lockdown I started getting period like aches on my left side which varied from niggly pains to ones that made me have to stop what I was doing and sit down. So I spoke to my GP over the phone at the start of July and explained and she said she’d send me for a scan because of my history and no point in her seeing me to confirm that it hurts when that area is pressed because I’d already told her that! From the day the scan was booked my pain stopped and I nearly cancelled it! I honestly thought they were just going to say that at 45 the pains were part of starting the changes of the menopause. I never expected them to find anything and then do an urgent referral. I have a large mass on my left ovary that is about the size of a Kleenex man size tissue box! Since I saw the consultant gynaecologist two weeks after the scan I have been under the gynae oncology care and everything is discussed at MDT meetings which are always on a Wednesday. My MRI was on 3rd September and then discussed at the MDT on 9th. My consultant then called me on 11th to say that while the mass does have some traits of a dermoid cyst, they are not happy to say that the entire mass is just that (they can be both apparently!). I had a CT scan on Friday to see if the ovarian mass has spread from or to anywhere else. My care is then being transferred to a different hospital in Bristol that specialises in gynae cancer and I will have a dedicated nurse there that I can call whenever I have questions. (Possible she’ll need to block me!). All seems a bit surreal to be honest - it’s not even definitely bad but either way it’s got to come out and they’ve said it will be open surgery not keyhole and as soon as possible. They said 8-12 weeks recovery after the surgery depending on how much they need to remove. At the moment the plan is just one ovary and tube. With twins that are 22 and a 21 year old as well and two step children aged 14 and 11 I’m happy for them to take the lot! I won’t be needing any of it anymore!
So for now, it could “just” be dermoid but I think until they biopsy it when they remove it, we won’t really know for sure. I’ve named my mass Donald - after Trump - because no-one knows how the ****** got there and everyone just wants him to leave! My "big" appointment is tomorrow after the MDT - to get the results of the CT and a date for the surgery. I'm actually excited in an odd way to actually get some answers and be able to ask some questions. It’s been a long summer waiting and wondering.
thanks for your help,
Sharon
