Inoperable Ovarian Cancer

Hi pompomteddie

I'm very sorry to hear that you've recently discovered that your mum's ovarian cancer is now inoperable and it's natural that you'd be shocked to hear this news.

I haven't had the treatment that is planned for your mum but I noticed that your post hadn't had any responses yet and replying to you will 'bump' it back to the top of the page where it might be seen by someone with the experience that you're after.

When you have a minute, it would be really useful if you could pop something about your mum's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hello

I am so sorry about your mother. I’m more or less in your mum’s position with exceptions.

I was given my diagnosis back in March. I’m disabled, I can neither stand or walk and because of my lack of mobility an operation would be risky and coupled with the pandemic, if I caught COVID-19, it probably would be fatal. I was also told chemo in my case would be ineffective, so I was offered what was termed a palliative option of a hormone inhibitor called Anastrozole.

I had a CT scan and bloods taken at the end of July. I had a consultation a fortnight after with a cancer nurse present but unfortunately my daughter couldn’t be there. I was told that I have small tumours covering my stomach, liver and diaphragm, there could be hundreds maybe thousands. Again I was told chemo would be ineffective and it is inoperable. My cancer is advanced which I believe is also called stage 4. On the positive side my tumours have shrunk and some have hardened and calcified. In March my cancer markers were 285 but now they are 223, I could carry on for months, even years.

I’m sorry I have no answers regarding treatment your mum is having, I thought I would share with you because I understand that we all are in the very scary great unknown.

please message me if you feel you need an impartial ear, so to speak.

may I wish you and your mum, the very best x

Hi pompomteddie .  I’m so sorry to hear about your mum.  I’m going through treatment, and although a slightly different situation I too was struggling with having so many questions and not having seen my Dr really since February due to Covid.  I requested a face to face meeting and it seems things are opening up a bit now, as I saw her last week.  It was really helpful, and so much easier than a phone consultation.  Can you request an appointment with your mum? It might help answer some of your questions.  Good luck to you both x

Thank you so much, I hope everything goes well for you. She has a phone consultation tomorrow so I will get her to request a face to face appointment. Good luck xxx 

Thank you for your kind words. I’m sorry you are going through such a tough time as well, and I hope your treatment continues to work for many years to come. 
I really appreciate you taking the time to reply. Xxxx 

So sorry to hear of all your problems with treatments and appointments . I have stage 3c ovarian , and completed six cycles chemo in June , carboplatin and paclitaxel and am doing okay and feel really well but I can’t have surgery as there is a patch on my small bowel . Although I was disappointed , remain optimistic ( the surgeon called me at home and explained why it would be unsafe ) all is dormant for the moment and have been told although incurable that it can be controlled . I am 75 and very fit and will try my damnest to stay that way . Good luck to all of you .