Ovarian cancer in a hospice

FormerMember over 4 years ago

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hi everyone, hope everyone is safe and well during this pandemic. May god give everyone the strength to fight this diesase.

I need some advice please for those who have ovarian cancer stage 3 c or stage 4.

Last year I had 4 rounds of chemotherpy after finding fluid in abdomen. They drained it out. After chemo had debulking surgery, first round of surgery took out only one ovary and then had to have a full hysterectomy. The surgery pain was very painful and still is very sore. I then had another 4 chemo sessions and they scanned to find out I may need a stoma to protect my bowels.

2020- i had my final chemo around January and was hoping I would be able to have a better life. However started getting pain again in March. They found I needed a stent in my kidney tubule so was very worried about that and have had a few infections and a lot of pain. I have been getting a huge amount of pain where I’m not prescribed palliative care in a hospice.

Anyone else suffering from this as I feel this may be the end. I will be told soon what treatment options they may be but very nervous as I hope the disease has not progressed to terminal stage. I have hope that I will be able to have more chemotherpy sessions after my pain is controlled

anyone in the same situation or can anyone help me please. I have young girl and pray so I can see her grow up

FormerMember over 4 years ago

Hello - My Stage 4 OC was diagnosed after emergency surgery for blocked bowel in September 2018. (No obvious symptoms beforehand - ugh) During surgery I had a stoma and, after recovering from surgery, had chemotherapy (Carbo/Taxol) followed by Avastin until Sept 2019 when CA levels started to rise again! More chemotherapy followed.

After some infections I had stents fitted, which stopped working, so I now have bilateral nephrostomies, which keep my kidneys working. Managing those well, but no treatment since February (Covid 19 to blame) means disease progression.

Just wanted to say that there are always people to help, especially with pain and symptom control, so make sure you tell the palliative care team and your GP about your pain, they want you to have as good a quality of life as possible. I have regular Paracetamol and Oxynorm (morphine med) when needed, both keep pain at bay.

Positive thinking helps too and I wish you every blessing, especially for you and your daughter. Having this ghastly disease does give us the chance to make the most of every day - virtual hugs x

FormerMember over 4 years ago in reply to FormerMember

Thanks so much for the reply. Virtual hugs to you too. Hope you are keeping well. I have a big family who are keeping me motivated and encouraging, the love and support they’ve given me has made me determined to keep fighting.

Hopefully next week whatever the outcome is from the MDT Meeting is good news and I’m able to continue another round of chemotherapy.

During covid the consultant prescribed me tamoxifen. I’m wondering why I was never prescribed avastin as I’ve researched a bit into this drug and may have helped me. I will mention it but i was wondering if anyone knows why I wouldn’t be recommended that drug??

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Ovarian cancer in a hospice