Ovarian Cancer

FormerMember
FormerMember
  • 3 replies
  • 30 subscribers
  • 2678 views

Hello. Please help me as I’m in absolute turmoil. I can’t eat, sleep or concentrate on anything. I am 51 years old and thought I was going through the menopause. The week before Christmas I went to the doctors as I had a constant dragging period like pain and backache. This has been going on for a while but had suddenly worsened. The doctor gave me a physical examination and fast tracked me to see a gynaecologist. I managed to have a transvaginal ultrasound and see a consultant before Christmas. My CA125 came back as normal. They were not able to find my right ovary but on my left ovary I had two simple cysts. One the size of an orange and one the size of a lemon. The consultant referred me for a colposcopy and he was happy with the findings and said he would repeat the scan and blood test in 3 months but the cysts would have to be removed after the second scan. I repeated the blood test and scan last Friday. I was due to see the Consultant on Monday but because of this awful coronavirus he rang me. I was just expecting him to say no change but we need to remove the cysts. I was absolutely floored when he said there was only one large cyst but now it had a thickened wall and that there was two cysts on the right side one 2 1/2 cm and 1 1/2 cm that looked like they had finger like cells in. He said I would have to have my ovaries taken out urgently and it would be discussed at the next multi-disciplinary team meeting and if I had not heard anything to phone back Tuesday. As you can imagine I’m in absolute turmoil as I cannot go to my family and friends to talk to them or just for a hug. Does this mean I’ve got cancer? I’ve been suffering with indigestion for a while too but just put it down to my age. I’ve been putting everything down to the menopause. Any advice is welcome. As I was told over the phone I didn’t have time to digest it and ask any questions. Do I fear the worst and hope for the best? Thank you x

  • Hi and a very warm welcome to the online community

    I'm very sorry to hear all that you're going through at the moment. Waiting for tests, results and planned treatment is hard at the best of times but right now, with social distancing, it's even harder.

    As it's now Tuesday I assume that you've heard the decision of the MDT and hopefully you know what's happening and what you'll be facing. Most people find that once they know what's happening they feel a lot better so I hope you do too.

    Do come back and let the group know how it's gone today.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much for getting in touch. I have heard from my Consultant. She said it is not likely to be cancer but my ovaries need to come out urgently. Unfortunately all operations have been cancelled for 4 months. She told me that my CA125 is 17. I have tried other hospitals, even private ones and they are saying the same. Apparently it is too risky with this awful virus that has taken over the world. I think I’m worried about it because my mum died of bowel cancer and now I’ve been on Dr Google I have found out it is linked. I am going to draw on the positives and take myself out of this state I am in. There’s absolutely nothing I can do about it. It is all totally out of my control. I’m going to put all my energies to supporting my lovely family and friends and anyone else who needs my help and pray that this virus does one really quickly so that people who need medical attention get it as quickly as possible xx

  • That's great news that your consultant thinks it is unlikely to be cancer! In normal times I'd be encouraging you to go out and celebrate.

    It's natural that you'll still worry until you have your ovaries removed so you might want to take a look at this on how to ease worry when waiting and also the NHS page on mental health apps, which includes links to some free ones.

    We've all done it, and it's hard to resist, but it's best to stay away from Google as searching there tends to fuel your anxiety and worry rather than reassure you.

    Wishing you all the best

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"