Hi 
i was diagnosed with low grade ovarian serous carcinoma of the peritoneum in may of this year. This diagnosis comes after over 20 years of fighting complex crohns disease and a total hysterectomy (including removal of my omentum) following a borderline ovarian tumour 6 years ago.
following the hysterectomy, i was on HRT as i was deemed a low risk for developing cancer, even though my mum had ovarian cancer also.
Ive been told that surgery is not an option as the cancer is scattered across both bowels, my liver and peritoneum, i also have 2 masses. All the sites of the cancer are calcified, i dont know why.
Ive been on endocrine therapy ever since diagnosis (tamoxifen) for the cancer but i am unable to take my once regular infusions for my crohns disease as its possible it may make the cancer grow.
This means i have to manage two diseases and its been extremely tough! Ive always struggled with my weight, its difficult for me to put weight on but ive managed to put on almost a stone since diagnosis by sticking to eating only certain foods. Diet and crohns is a whole other discussion lol but ive found that the tamoxifen causes a few nasty side effects. I keep struggling with bloating and constipation, i have laxatives and ive upped my fibre but it doesnt always work. Constipation with crohns can be extremely painful. Anyway ive to keep things moving so my bowel isnt pulled taught where the cancer is growing on it. Any hints and tips would be greatly appreciated.
The other thing i cant get my head around is that i have no idea how long i have and neither do the doctors. Im under permanent palliative care for the foreseeable future. I worry that there could be other things i could be doing to try and slow the growth, the doctors seem to think this cancer has come from the borderline tumour on my ovary.
Im also worried that my daughter is at risk, shes only 15 and its been a really difficult couple of months for her. My son, who is 25, has dealt with it a little better but i worry about how they will cope once im no longer here.
Theres so many thoughts whirling around my head (i have anti anxiety meds too) and ive had a fair few tearful days. Im just struggling to be positive, i know its low grade, but i also know its rare and resistant to chemo and so difficult to treat.
if anyone is going through something similar, id love to chat. Any and all comments are very much appreciated.
