Allergic reaction to Paclitaxel - others experiences with what happens next?

Hi , sorry to hear about your reaction to taxol . I had a severe reaction 5 minutes into my first infusion. ( adrenaline x 3 and an overnight in hospital) It was decided that I would continue with carboplatin on its own. I’m stage 3c HGS . I had 4 chemo, surgery then 2 chemo. Carbo did the job well, I’m now NED . It was explained to me that carboplatin is like the cake and taxol the icing. It tough balancing risk , I know for many taxol is tried again. Best wishes for ongoing treatment. X

Thank you SEM 24.  Gosh your allergic reaction sounds like a really scary experience, thank you for sharing that you also ended up with carboplatin on its own, and the reassuring analogy.  Long may your remission continue xx

Hi I too had a reaction on my 2nd dose, so they changed me to carbo / with docetaxel which was ok - this was 4 years ago - there is always a plan b - good luck xxx 

Hi lilyov 

I had reaction on my 3rd infusion so it came as a bit of a shock! It was the first time my infusion time was reduced so once they pumped me with steroids I begged the doctor to restart but slower and after some umming and arrrring they agreed and all went well. I asked at the next consultation for the abraxane ( as they said no more paxi) and after some calls were made they said I “qualified “ for it ?? As you said they said the trust don’t give so maybe if you have a reaction on your first one they don’t offer it at all?? Just a theory! As you can see from SEM.24 having just carboplatin is the main course ( so to speak) and it’s worked wonders :o) 

I know you want the full works to fight this awful disease but try talking to your cns nurse about any other options but otherwise trust your team want to do the best for you x x good luck with everything x x 

Hi, I’ve just read this, and am sorry you went through it. 
i had experienced severe allergic reaction to it as well and ended up in hospital. I’m now worried what and if any second treatment will be given to me, so please share what was decided in your case in the end. I have read that docitaxel is a good option and really not sure why my doctor is not offering it. 

Hi 

i too had a reaction to paxi and they immediately put me on docetaxel , which i had with carboplatin- thankfully i was ok on this combo - there is always a plan B , so maybe they are discussing an alternate that will suit you best 

good luck with your treatments, and keep us posted xx