Hello, firstly I just want to say I am very calm and not freaking out,just more curious and feel able to deal with whatever is coming my way. It's a bit long so bare with me. I have been HPV positive for about three years now with yearly smears, I was then sent for a colposcopy at the beginning of the year and was told everything was ok but I needed to go back again in a year. That's fine. I am 45 so assumed I was going through the perimenopause and have been on HRT, all was ok with some unusual things happening but was assured it was normal, like bleeding heavily, more painful periods and I have bled in between periods with also pain in my ovaries (assumed it was ovulation) my consultant decided to send me for a transvaginal scan which I had done yesterday. It was very uncomfortable and a bit painful. The lady looked at my scan and asked for another doctor to come take a look but wouldn't say what was wrong. Except they could see some fluid in my fallopian tube and my tubes were inflamed. They then asked me loads of questions about pain, bleeding etc which I answered. I have no STI as I test regularly and have just had the results back today. All clear. They quickly shut me off and wouldn't tell me anymore information and just kept saying gynaecology will need to talk to me and decide what to do next. I'm ok as I said just more confused. Id rather know what's wrong that guess. My consultant is not back until Monday so I guess I have to wait. Some other things, my testetorone was high,I have been struggling with fatigue (again put this down to perimenopause) and low energy. I just feel a bit left and second guessing as no one would give me any answers. I'm guessing the reason is because what they say wasn't exactly good,they also kept moving the screen away so I couldn't see it.Ihave also been experiencing nausea,lower back pain and aching bones, all of this I just assumed was down to perimenopause.Sorry for rambling on. I feel quite positive as I said just a bit "left guessing" thankyou for reading x i guess my question is how long will it be until I see someone regarding this? My scan was wednesday morning and have heard nothing yet.
We’ve chatted before in the cervical group but it was some time ago.
I don’t think it’s possible to assume things from how the TVS went. Sometimes you can get some indication from the staff doing the scan, but not always. It may be that further testing is needed for example to explain the fallopian tube inflammation and the fluid present there, as they may not immediately know the cause.
When you see the consultant will depend on when the results from the TVS have been passed to him/ her and the results may need to go to an MDT Multi Disciplinary Team for further discussion with others involved. As you only had the scan done on Wednesday, there may be a little wait for things to move forward, so your consultant may not be able to tell you much if you call on Monday.
It’s good to feel positive about things at the moment when you don’t have any answers, as that will be more helpful for you. There may be a straightforward explanation, but it is difficult, I understand, when you’re in a bit of a state of limbo right now. We all want answers when we have symptoms which are difficult but I hope you’ll get some more information soon.
Sarah xx
Thanks for that Tinkerbell1980
It must be very frustrating, but glad to hear you’re feeling good!
Sarah xx
It’s difficult to know what they’re looking for in a blood test as tests can be done for so many different reasons and they often just tell us “you need a blood test”. It might be a CA125 test which tests for a certain level of protein in the blood but is not a diagnosis in itself. It’s just part of the jigsaw making up the diagnostic process and there’s sometimes a lot of different tests needed to get a definitive answer.
In my own experience of different consultants, they don’t hide things, and there is no fear about them telling you the truth but they want to be sure of the right answers before they tell you anything.
In regards to the mri, it’s just giving another piece of the puzzle-it will give lots of pictures of various things and will help in giving a definitive answer if there’s anything which needs any treatment. I have been given an mri within a week of it being suggested, but also had to wait several weeks for one. It will depend normally how busy the hospital is, and the urgency of the reason for the scan. I would call up your consultant’s secretary and explain you are going on holiday next week-ask them to note the dates you are away and request that the scan be scheduled for some point after your return. I’ve always had to give dates that I won’t be available for scans/procedures so it’s fine to let them know in advance.
Keep up that positive thinking!
Sarah xx
It’s only been a week since you had the mri, and I honestly don’t think you can read anything into how long it takes for results to come back, especially at the diagnosis stage. Typically results can take a couple of weeks, and if they have to go to the MDT (multidisciplinary team meeting) that also means it can take a little bit longer for you to hear.
Sarah xx
