Numbness in feet

Hi Marie

I had carboplatin and paclitaxel for endometrial cancer in 2022.

I am just coming up to my 2 year post treatment check up.

I developed the numbness (neuropathy) from the first cycle of chemo and despite changes in doses- it continued. It persists today. It has been discussed during check up appointments and I was told for most people it does eventually improve. I have been prescribed amitriptyline for the nerve pain but it does not do a lot for the other sensations. I have also had a physiotherapy assessment which has recommended an exercise programme. i have recently began this and am seeing some difference. 

It may be worth asking whether a referral to a physio would help. My feeling was that although the neuropathy could not be cured for me, the exercises would help prevent it getting worse and exercising the muscles in the area would help improve stability. I don't know whether this is something that should be done during treatment or whether it is better to wait until after treatment- but worth asking. The exercises are basic but I believe are helping. 

Jane

Hi

Having gone through so many different chemo combinations and reading before commencement of treatment 2 3/4 years ago that neuropathy was a huge possibility I looked at what options I could take.

I use cold therapy socks that mention neuropathy as well as other issues and purchased gloves also.  In essence they contain gel packs that you put in your freezer and take along to your chemo sessions.  I do a lot of needlecraft and therefore I don’t want to lose my fine motor skills in finger.  So far I have only experienced slight neuropathy that goes away quite quickly.  Whether this is down to the ice or just good luck I don’t know.  You see patients wearing cold caps during chemo sessions which unfortunately I was advised wouldn’t stop my hair falling out because of what chemo I was on. I guess it works the same way.  

I also use a Tens foot plate to help with restless leg issues that can happen during the nights while undergoing chemo and hope this might help with neuropathy as well.  Unfortunately everything is trial and error and what works for one doesn’t help others.  

I really wish you well.  It is hard dealing with cancer but you are constantly battling issues raised as a result of these drugs.  Good luck in trying to find something that helps.