Today I had a colonoscopy and a gastroscopy and a cervical smear.
Started off under Colorectal Consultant and after a clear colonoscopy and gastroscopy with NED, one of the consultants came to see me and said next thing is PET scan and then debulking surgery with removal of omentum then chemo.
Was so happy !
Then was told the Gynae consultant wants to see me and do a little examination too, and also a cervical smear.
In the chat afterwards he said he now believes I have small bowel cancer! because the histopathology last week says mucinous adenocarcinoma of possible GI origin, and he thinks thats correct and clearly is the right diagnosis. If so why waste time with colonoscopy and gastroscopy ! This despite the fact that the CT scan is highly suggestive of a Gynae origin, either primary peritoneal, tubal or ovarian and colonoscopy and gastroscopy ( where no biopsies taken) refute Colorectal!
A friend who just happens to be a Consultant Radiologist in Wales, and who has looked at all my scans and histology report and who said there is no cancer in my small bowel and it's totally normal.
She says I need to get a second opinion and new Gynae Consultant.
The Gynae Consultant refused PET scan and debulking and says we have to wait 2 more weeks for further tests to come back to prove it is GI mucinous adenocarcinoma. He says no point in PET scan because I have extensive mets in abdomen, and that is not even true.. I have maximum of 4 mets in omentum. He then admitted he knew nothing about HIPEC, either.
I am not happy with his opinion and wish to seek advice from a different Consultant, the one I have in mind is the lovely lady who I first saw in Gynae. Can I just request her for a second opinion?
Or change to her.
I don't think the current Gynae Consultant is any good for me he appears to want to dump me on the Colorectal team
It was his idea to order colonoscopy and gastroscopy to prove the cancer is GI, now it's visibly not GI he seems to be fixated on it being from a different part of the GI tract.
Small bowel cancer is a very rare cancer!
Also a PET scan would show if cancer in small intestine.
Mucinous adenocarcinoma can also come from fallopian tube, ovary and primary peritoneal cancer I am told. It's not confined to just GI tract.
I feel angry and duped
