Boarderline stage 1 c1 ovarian cancer

Hi BINNO and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

I'm sure some of the forum members will be along soon to share their experiences with you.

I’m having the same conversation at the moment about chemo or not

My oncologist says it’s not needed for stage 1 but looking online, it seems that some oncologists do recommend chemo!

Hi BINNO

Please let me know what you decide re chemo and what you're advised to do!

I'm getting very conflicted advice myself! It's such a worry, isn't it?!

Hi. I'm sorry you found yourself in this situation.  It's pretty rubbish.  Mine is a similar story. Unfolding by the day! Initially,  my tumour both tubes and ovaries were removed via keyhole. The tumour burst but I wasn't told this Initially.  The histology confirmed it had been cancer. I went back in, exactly 6 weeks later, full hysterectomy,  omentum, appendix etc. Histology indicated no spread but I was advised by Gynae Oncs that the MDT was recommending one course of chemo and sent me to see the oncologist.  He said that because my cancer had been caught early, grade one but had burst, grade C, there is no data for him to give me and that it was as risky to have chemo, hormone therapy as not to. So, Initially I decided not to. I then chatted with my GP, who was more candid,  explaining that any reoccurrence would move me from treatment to terminal.  I spoke to my specialist nurse, who said the GP had been right to have that conversation with me. She said that I should have another appointment with the gynae oncs followed by the oncologist.  The gynae oncs gave me the information I probably should have had weeks ago. She confirmed that the tumour had burst, what they did to mitigate, that the spill and the fact that histology showed cells on the outside of the tumour, is why she feels the mopping up chemo is needed. Once I had all of that understanding,  I agreed with her. So at my oncologist appointment,  we went through the chemo details and he is now arranging it. I am not looking forward to it but feel it gives me my best chance. If ever I do (hopefully not) get any reoccurrence in years to come, I can know in my heart that I did everything I could at the start (now) to give my future self the best chances. You are very much not on your own. Can I ask if there's a link for the articles you read? I hope things are going well for you. Let me know? 

Best, H27 x

Hi H27, 

I get my results Wednesday so will up date you , I can’t remember which articles I have read their have been so many as that’s all I have been doing and come to the same conclusion of depends who you are under as guess it’s a matter of opinion I guess .. I am leaning on I want it to prevent anything as much as I can on coming back , but we will see , who’s things with you ? X