Hi
I am new to this forum. I have joined because 4 weeks ago, after an ultrasound and an MRI, I was diagnosed with a post-menopause (I am 57) hematosalpinx and endometriosis. I am waiting for an appointment for a hysteroscopy and biopsy as there's a chance the hematosalpinx could be caused by fallopian tube cancer. I had an ectopic pregnancy in 2010 and was told at the time that the other tube was also damaged. I had the option at the time to have the other damaged tube removed, but I chose not to because the ectopic pregnancy triggered an autoimmune illness and I didn't want anymore surgery as I was dealing with that.
I have read that fallopian tube cancer is quite rare and I can't find any posts about it on this forum. Does anyone here have fallopian tube cancer, and if so could you give me any insights into the process of diagnosis and treatment?
Many Thanks
Hi Sitting_in_the_shade and welcome to Macmillan and the ovarian group.
I’m sorry to read you’ve had to have some scans done and are now waiting for a hysteroscopy and biopsy-it’s always stressful waiting to find out more information about what might be next.
Fallopian tube cancer is a rare cancer, and I haven’t been able to find any other posts about this specific cancer in the group. This link I’ve made will take you to the Macmillan information on it which you might find useful while you’re waiting to see if you get any more replies-
I hope you’ll not have too long much longer to wait for your hysteroscopy and biopsy and that you’ll come back and let us know how you get on.
Sarah xx
I’m glad the information was helpful for you. When you have a rarer type of cancer, it can be difficult to find others who can relate, but hopefully this will not be your diagnosis and things will be more straightforward to manage. Fingers crossed.
Sarah xx
