Hi,
I had a 15x15cm malignant mass removed on 8th Feb. The origin is not entirely clear as the biopsy was inconclusive however CA125 was 256 and CA19-908 prior to surgery.
The sarcoma and gynae team were discussing my case and gynae were asked if chemo would be started prior to surgery but the decision was made that the tumour needed to come out.
They did advise after the surgery that they were unable to locate the right ovary and referred to it as “neoplasm of the right ovary” on the discharge letter.
So can I ask, knowing the above, is it likely that I will need further treatment following the surgery?
Presumably it is likely to be chemo?
If so, how soon am I likely to commence this treatment? What is the average wait time or is there a certain timeframe within with I can expect to commence?
I'm not a member of this forum, so can't help with any of your questions, but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again and hopefully some of the forum members will pop on to share their experiences with you.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Chemo usually starts fairly quickly after surgery (within 2-3 weeks). The standard protocol for OC is 6 sessions of "carbo/taxol", (carboplatin + paclitaxel) 3 weeks apart. I am wondering if they may delay until the histology is done on the mass that was removed, in case that has any implications for which treatment you need, I would expect you to get an appointment soon to discuss the histology and also do do the consent forms for the chemo - so perhaps that's the thing to chase up.
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