Facing chemo hairloss

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Hi All.

I'm delighted that my surgeries have been successful. I am now preparing for the next step, the chemo. I see the oncologist on Fri 8th to start the ball rolling. My question isn't so much about dealing with side effects of the treatment, more abouty upcoming hairloss. 

Am I being ridiculous to think that it must be within the realms of possibility, for my own longish hair to be cut and, perhaps by a wigmaker or a competent seamstress, to be seen onto some type of stretchy band? I'm thinking that if I could wear that round my head, under a hat, I'd still have my hair framing my face when I go out. I wear hats, summer and winter a lot anyway. Surely this is achievable and not too costly. It seems like quite a simple process to me 

Anyone done it, tried it, know anyone who has? Anyone got thoughts, ideas, suggestions? 

Thanks in advance and best to all, wherever you are on your journey x

  • Have you not been offered cold cap treatment to try and retain the hair you have? I decided against it and bought a wig, it's very easy to put on and quite realistic Real hair wigs take a lot of upkeep compared to synthetic wigs and are generally more costly. I think what you are asking is probably something only a specialist wig make could answer. Maybe make an appointment with a supplier to help you decide?

  • Hi. Thanks for the reply. As I say, I see the oncologist on Friday which is when all the discussion, including about cold cap will take place. At this point I'm 99% sure I don't want it. I also don't want a wig. I know that some people, as you have, decide that's the right way for them. It's just not me. I simply feel like, when I wear hats, which I do a lot of the time, my hair round my face is all you see. It can't be beyond possible to be able to make a kind of frame of hair, not a wig. There is a wig maker the next village. I do plan on dropping in. Thanks for your reply and suggestions. I hope your journey is going well.

    Best 

  • Apologies for the delayed response. I hope you were able to find a solution. My operation went well, but still suffering from PN. Gearing up for radiotherapy later this week. Best wishes x

  • Hello
    I know this post is quite old but wanted to swing by and say I felt the same about a wig (and still don't like saying the word out loud for some reason!) . However, I found that after a few months (3 months) of being totally bald and wearing some pretty stylish scarves I had collected over the years over turbans made from adapted cheap T shirts (for volume) that I just got increasingly irked by people staring at me and wanted to fit in. I love wearing hats too - they're kind of my signature style. 
    So I bit the bullet and got a w*g from Lush W*gs. It really is brilliant and very realistic!  Only thirty quid plus delivery too. I do often wear a hat over it to feel like me but also wear it on its own. It's great as it's a lob style which I had before except it's purplish which suits my skin tone and gave me a chance to experiment with hair colour! (I'm usually a brunette).
    I feel like I can just melt into the background now and don't get the stares/pitying looks! It seriously boosted my confidence.
    However, given the weather is warming up, the w*g is too hot even without a hat, so on hot days I wear a chemo beanie which is bamboo with a silk lining and they are great too. I can send photos if you like. 
    Just if you change your mind!

  • Find out if you are a candidate for Cold Capping. Paxman have loads of great info on their website.  It isn’t a guarantee and depends on your chemo drugs. I’m losing quite a lot of hair despite cold capping but I know my regime has about 30% of people keeping up to 50% of their hair.  I cut my shoulder length hair to jaw length to reduce the stress if it fell out and I’m glad I did. Matting when you start shedding is a real problem.  If my curly long hair did what my short hair did this last hair wash I’d have had to cut it all off. 

    check out the charities Cancer Hair Care and Look Good Feel Better are brilliant and they have loads of resources and links to suppliers.  They do some great webinars and have brilliant advice for cold capping too. 

    If you are getting a wig it is recommended to get one in advance so it can look most like your hair whilst you have it.  Your chemo centre usually ahve local suppliers they can link you to.  I decided not to get a wig and go with head coverings instead when I need them.  So far I have bought a Chemo Cap for bedtime from Jasmine Silk which is brilliant.  

    Here's how to put them on:

    Square minimum 75 x 75cm - more elaborate styles need. 100 x 100 cm

    https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/hair-loss/scarves-and-bandanas

  • Thank you for your reply. I do have a wig on standby now. I also bought a halo for wearing under hats but, to be honest, it's not great. So far, I'm managing with scarves. Best to you Heartpulse 

  • Thank you for the reply. I now have a wig on standby and am managing with scarves. I chose not to have the cold cap as I didn't want the potential headaches and discomfort and they to still lose my hair anyway. 

    Thank you for all the links. Really appreciate the efforts you've gone to, to help Relaxed

    I hope you are going well  

  • I had stage 3 ovarian cancer in 2021.After major surgery with removal of various organs,had 6 rounds of chemotherapy . Within 10 days of starting 1st chemo, started to loose big chunks of my beautiful thick hair. I was prepared to loose my hair but not like this. I was so upset I told my husband to shave of my head with his hair clippers and ordered few chemo caps which I wore for 6 to 7 months without being ashamed. Glad to say my hair grew back thick and even better then before . From beginning,I had decided not use cool caps esp in winter. and the discomforts  of using it.                                                             On a good note, I am doing well ,CA blood test remaining normal  and CT scans also so far ok. No more CT Scans for now but , 3 monthly blood test and Tel consultations will continue and enjoying my usual hair cuts.