Feeling let down

Hello Marsvin - I am so sorry to hear about your diagnosis of ovarian cancer.    This is my diagnosis also.    Having been given such a diagnosis - it can be so terrifying and all I wanted to do was to get on with the operation they had planned.    Those weeks in between waiting for the op were horrendous.   I just wanted to reach out to you and say that I hear you and whilst I am not on your journey - I have some idea what it is like to be diagnosed with ovarian cancer and have that 'waiting' time between diagnosis and treatment.  I am totally new to all of this - in the club that that no one wants to be in!  So I cannot give much advice - maybe someone else will be in a better position than me.   Were you given any contact numbers at all or letters from the hospital with a clinic telephone number on that you could chase up?   Also you could reach out to MacMillan - they have an online forum to ask questions and a Helpline - that would be a really good source of information and support.   I would also contact your GP - who should be able to help you establish what should be happening and what to do next.  As I say, I am so new to this and I don't really know the system but someone else on here will probably know.   I am glad that you have good support from loved ones and friends - so vitally important.

Warmest wishes are sent your way.

Thank you so much for such a kind & practical reply. X    I was given a number but no answer for 2 weeks. I left messages with my number but nobody answered  

It's all a moot point now as I finally had an appointment with an oncologist yesterday who was superb. All the information & plans that were needed. They may not have been what I wanted to hear but certainly what I needed to hear. So stage 4 chemo in 6 cycles of chemo, 21 days etc. Scan to see if shrunk at the end then if it has hysterectomy plus potentially peritoneum too. Then follow up preventative chemo. Then see. So a year of fighting with treatment but at least I can now start the fight. 

thank you for letting me know how you have got along.   As you say - not perhaps the news you wanted to hear but at least there is a plan.   I remember thinking back when i was first diagnosed and waiting for the outcomes from the MDT - what will they do?  Can they actually do anything?   When they come back with some firm plans of what they are actually going to do - there is a 'kind' of relief!  As I say, its the club no one wants to be in but once you're in it you have to get used to the rules of it!   The waiting for results is totally grim. 

It is great you have lots of support.   That is invaluable. And there are lots of people on the forum only too willing to listen and support you.  Warmest wishes are sent your way x 

Thank you so much. Your post really helped. All the luck in the world with your fight xx