Hello
Iwas diagnosed with Ovarian cancer stage 4a in August 2021. Also am BRIP1. I Have had debulking surgery and 8 rounds of chemotherapy and in July 2022 until today was on Niraparib. Today I was told my CT scan in early June 2023 shows a dark spot on my liver and a smaller dark spot on my spleen. Both have appeared since a CT scan in late March 2023. It’s also on my peritoneum but i knew that from day one.
I start 6 sessions chemotherapy again in two weeks.
Stupidly I forgot to ask about the possibility of more surgery. Is this at likely? Or will it just be the chemotherapy? Any advice would be gratefully received thankyou so much
Blossom1
Hello Blossom1
I am sorry to see that you have to have some more treatment for your ovarian cancer due to some dark spots being found on you liver and spleen. It is good that they can offer you some chemotherapy and I hope that it goes well for you.
Have you got a CNS that you could ask about the surgery? It may well be that they will start the chemo and then offer you a scan to see how everything is responding and then they will make the decision. Or it may be that they do the 6 sessions and then do the scan to see if surgery is possible or needed. I often called my CNS during treatment and they never minded. I think when you are in an appointment it is easy to forget to ask things and totally normal. I go in with a list of questions now so I get what I want out of the way first.
Hope this helps
JAne
I am sure it was. I am sorry that you are having to go through more treatment. Chemo is tough and I found it hard at times.
I always write down questions now. I am the sort that I can go to the doctors feeling really poorly or with lots of worries and they ask how are you and I automatically say fine!
I find it helps get to the point about what is important to me rather than having them tell me what they think is important to me. My CNS never minded questions and if she couldn't answer straight away would find out and get back to me. They also had an answer machine where you could leave messages and they would call you back.
Good Luck, I am sure they will be able to give you an idea what to expect. I think that sometimes they are so use to dealing with it all day to day they can unintentionally expect us to be better informed about things. But however informed you are, it is harder when it is you they are talking about.
Let us know how you get on and if there is anything else, please ask.
Jane
I understand, to be told that you need more treatment and to have changes show on your scan must have been so upsetting but you have a plan of action now (albeit different to what you had hoped for) and hopefully the chemo will have a good result for you. Wishing you the best of luck and you know where we are if there is anything you need
