So about 2 months ago, during routine blood tests done for my diabetes screening my gp found that my wbc and platelet counts were unexplainably very high, I hadn't lost weight, didn't have signs of an infection and wasn't feeling unwell. He referred me to Haematology, who did further blood tests and arranged for a abdominal and pelvic ultrasound and a trans-vaginal ultrasound. My bloods had more or less gone back to within ok range, but the trans-vaginal ultrasound showed a cyst on my left ovary so I was referred to a gynecologist.
After meeting the Gynecologist yesterday, she reviewed my scan and took a detailed history from me and she explained the scan results more clearly saying the cyst on my ovary was 6cm, didn't have any blood flow, but that the edges were jagged and appeared rough and also pointed out that the lining of my womb was abnormally thickened and what appeared to be a 3cm polyp was present. She also pointed out that one of the tests from haematology was the brca gene test that I had tested positive on. She said she wanted an CT scan done and also for me to have a procedure called a Hysteroscopy where they will remove the polyp from my womb and take a sample from the lining for testing. I was also sent for more blood tests, this time something called a CA125 and a CEA test.
Today I have received a phone call for the CT scan appointment which is set for Tues 9th and was informed it would be a chest, abdomen and pelvic scan and I was informed the hysteroscopy will take place the following Monday 15th. Then a multi-discipline team meeting will take place once all the results come back to discuss what happens next.
I'm terrified to say the least at the possibilities of what this all could mean, I'm a single mum to two autistic young adults whom both rely quite heavily on me and my support network is pretty much limited to one friend who I see 1-2 times a week. I've very isolated where I live with no real supportive family around me and as much as I'm scared for what this means for me, I'm also terrified on how should this be a bad outcome, how I will manage treatments as well as being a carer and meeting the needs of my kids. Overall I'm just feeling really really alone right now and just wanted to get everything out.
I hope you are ok,I have just joined on here today as I am panicked by a routine blood test showing ca125 level is high and just wanted to see what that really means. All I can say is I understand your panick and I Hooe you are doing ok I suffer anxiety issues anyway so trying to seek online if anything that will help reassure me it might be nothing to worry about x I hope things workout for you x
Hi there. I haven't had my ca125 results back yet, but from all the reading I have been doing a high result doesn't always automatically mean cancer and can point to many other things including Pelvic inflammatory disease or endometriosis, I would imagine the next steps for u will probably be a trans abdominal and trans vaginal ultrasound, then depending on what, if anything, they find u may be referred to a gynecologist. The TV ultrasound is a little uncomfortable but shouldn't be painful.
I wish you luck and hope it turns out to be something easily dealt with, try not to worry too much. A lot easier to say, than do, trust me I know.
Hi,
My mum has suspected ovarian cancer. A complex cyst with solid ocmponents measuring 5cm was found on her left ovary. She has however got a prolapsed uturus too so some of her symptoms may not be the cyst itself. She is currently waiting to have a hysterectomy due to her age and risk factor. We have an appointment on Wednesday to discuss the operation. Her ca125 came back normal and nothing further was found in the mri or ct scans.
I'm so sorry to hear what you are going through. I can understand your worry about your children. I'm a full time carer for my husband and I don't have any family around me or people I can turn to for help.
I am in the situation of waiting for a two week referral after having what is like a very heavy period - nine years after my last one. Last year for something else I had a ct scan and my womb looked bulky but after a few questions they did not think I needed to see a gynaecologist so feel pretty scared at the moment. I've had breast cancer in the past and my husband was there for me all the time and the children all of the time.
One of my biggest worries now, apart from the obvious, is how to deal with appointments and possible surgery. I have to take my husband everywher I go and he can't be left as he had a severe brain injury and has just started with epilepsy. I think the worry about loved ones makes it all so much worse.
I hope the outcome for you isn't as bad as you fear
Hi Anna, yeah I completely understand how u feel, the worry when u are someone's sole carer and don't have much outside support is tough enough, but when facing something like this that is potentially life changing, the first thing that goes through your head is how will you be able to continue to care for your loved ones.
I think, touch wood, that I've been panicking for little reason. Still haven't had my CT results back, but my CA125 test came back within normal range and the hysteroscopy I had showed my womb looked healthy enough aside from the lining being thicker than expected, but a biopsy was taken anyway so waiting results from that also. But hopefully it will be good news.
I hope you get a positive outcome as I know the stress levels are probably immensely high right now. Believe me, I know it's so easy for someone else to tell u not to worry too much, because I'm sure that it is on your mind 24/7. But please reach out if u need to offload, people on here have been very helpful.
It's definitely tough. It's good to hear your CA125 has come back normal. We asked when we went for the pre surgical op on Wednesday and they said they didn't know as the hospital that did that blood test just sent them a result of 'normal' no numbers which I thought was odd...
Thank you for your kind words, the same right back at you - I'm so happy these forums exist!
Big hugs to you
I am in a similar health situation, although my children are grown up thankfully
I have kept the suspected diagnosis to myself as I don't want to worry or upset anyone in the family until I have to
It is like torture waiting for answers
Disrupted sleep, total mental blurring, alongside pain and discomfort
I hope that all will be well with you
Lyns.x
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