Worried

FormerMember over 3 years ago

3 replies
59 subscribers
1425 views

Hello ladies

I’d love some advice please. If you saw my older post, I was waiting to go to my nhs ultrasound appt today. I’m due to have a Hysteroscopy and laparoscopy for irregular bleeding.
So at the appointment rosary the abdomen u/s was very quick and the sonographer raised no concerns. I emptied my bladder then came back in for a transvaginal u/s. This seemed to go on for ages! The sonographer sighed a few times and asked me how old I was, signed again. She then said ‘do you experience pain here?’ And lightly touched where I presume was my left ovary. This worried me immediately as yes that’s where I’ve been experiencing the most pain. There was more sighs and she finally said there is a cyst. I said ok. Then asked how big it was and she said I’ll remeasure it in a mo as I was getting changed. She then measured it but seemed super cagey and said we’ll have to keep an eye on it and will inform a report to my gp. I was told to take care of myself and sent on my way. Now I may be being over sensitive but she didn’t tell me the size and generally seemed concerned but didn’t say any details to me. Does this sound weird to you? She also said there was a lot of gas. I’ve been bloated on an off for awhile but yesterday I woke with middle lower stomach pain that just wouldn’t go. By the end of the day I had indigestion/heartburn pains and overnight it woke me an I could only get light relief being hunched in a ball in bed. My lower back also really hurt. The back issue when our shopping the day before spasmed out of nowhere and I had to come home from being out. I had taken ibuprofen and paracetamol for the back pain so had presumed to at caused the bloating yesterday. Today I still have the pain and I’m super bloated. Deliberately didn’t take pain relief to see if that eased the bloating but nothing. My stomach is so sore right now I can’t wear even jogging bottoms and also at my bra line I can’t wear my bra either. there’s so much pressure in my stomach from bottom to heart level I feel like I could burst.
i realise I’m rambling but it’s just a worry as it all seems to be at once. I don’t know what to do, am I supposed to just wait for drs report? If the sonographer says it’s a cyst is that it, it can’t be anything more sinister?
any advice greatly received. Thanks x

latchbrook over 3 years ago

I'm sorry to read about everything you're currently going through in trying to get a diagnosis and I can understand your worry.

I have a different type of cancer, so don't have the experience you're looking for, but noticed that your post hadn't had any replies yet. However, I can see that the same post you put up in the womb cancer group has had several replies. If you haven't seen them clicking here will take you over there.

Wishing you all the best

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Cadence over 3 years ago

Hi there! I am so sorry to hear you are going through this, and of course you are worried. It is natural. And it's so hard to be patient while you go through all of the testing required to get a firm diagnosis. I am newly diagnosed with high-grade serous ovarian cancer, and just getting to grips with everything. There is no way to tell if the cyst is sinister without a biopsy. It's possible they will send you for a high-contrast CT scan which can see things better than the ultrasound. And then maybe biopsy. In the meantime, the most important thing you can do is to try to distract yourself from worrying. Worrying is totally natural but won't help you. I coped with the long wait for a diagnosis (or at least it felt long!) by taking long walks, watching films, talking with friends, trying to find things to laugh about, and by focusing on my work and family. I also have similar bloating to yours and it sucks, I know. My stomach is always gurgling like faulty plumbing. Have you been assigned Macmillan nurses? If so, definitely ring them and express your concerns. There may be something they can do for you. At very least they can communicate with your doctors for you. Sometimes in some situations liquid can be drained from the abdomen. I ring the nurses ALL THE TIME. And they are lovely and helpful. Also, I adore Maggie's Place, which is a charity that supports cancer patients - I know you have NOT been diagnosed with anything, but even so, if you are worried there are always amazing people there to talk to you about your worries. If you are in London, the Maggie's Place outside Charing Cross Hospital is beautiful (and has free tea and coffee! Fruit bowls! Books! Wise women who will be kind to you! Please lean on people, ask questions, ask for support. You deserve it and need it. Sending you my best thoughts and crossing my fingers and toes for you. xo

FormerMember over 3 years ago

Hi Cheekydeeky

Sorry you're struggling.

Firstly, in my experience people doing the scans don't tell us anything so try not to read too much into that element.

Secondly, trust you're gut. If you're in significant pain call your hospital gynae ward. My hospital has an emergency gynae. I was admitted as emergency gynae, as my pain had spiked over 48 hours,and had surgery a few days later as it had started to rupture. At that point of my surgery it was still just an unidentified mass and yours may very well be too.

Thirdly, if pain is manageable but you're concerned, chase the consultant's secretary for info on results.

I was monitored for about 4 months and on a surgery waiting list but ultimately the mass grew larger, much quicker.

Sending love

Lisa

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