Chemo for low grade serous

Hi Frightened01 and a warm welcome to the Online Community. I just dropped by from the Womb group and noticed you've not yet had a reply from the ladies here. Whilst waiting for someone to come along and offer support and advice I could mention if you type chemo for low grade cancer in the search bar at the top of this page, select anywhere and you should find some answers. 

In my own case I had 3 internal radiotherapy sessions (Brachytherapy) which were optional and supposedly Belt and braces to prevent recurrence. So it is your choice but cancer has a habit of reappearing so think carefully.

It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. Why not take a few moments to update your profile. It's always helpful for us to read if we want to ask you questions and you also won't end up repeating yourself. You can enter it into your profile (click on your username and select “Profile”) . You can amend or update it at any time. If you’re not sure what to write, just click on my username.

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

Hi Frightened01 I have low grade and had surgery and all visible cancer was removed. I was stage 3c and offered chemo but told it was in my best interest to have it. I went ahead. I now have NED but neuropathy in both feet which Drs said would go away, it is now a year since chemo and I still have it. I have since had tamoxifen but now on Exemestane. 
I see you wrote this 9 months ago…. sorry I’m late with my answer. I am very interested to know how you are doing xx

Hi Nanny C

Thank you for your reply, 

I am thankfully NED, I had the same as you Low grade stage 3c, I had surgery in February and they removed all visible cancer. I had lengthy chats with my oncologist and got a 2nd opinion from Christi's and neither one could actually say how effective chemo would be. The study on low grade said the woman who had chemo, if they had a recurrence it would happen a couple of years later than the woman who didn't. I basically got from it that if it's going to come back it's going to come back. I had 1 round of Carboplatin and had some bad side effects so I decided not to have anymore. I'm also not doing hormone therapy because again the side effects are quite bad and there's not enough research for them to say whether or not its going to work and how long I should take it for that kind of thing because i'm only 34 they don't want to take the risk of long term side effects, even then they said it could return. My outlook now is that if it's going to come back regardless of treatment it will, so I have to just hope that my indicial surgery was good enough that it doesn't.  I am really sorry to hear about your experience, I think treatments can be brutal, I hope you're recovering well and hope your neuropathy goes. xx