Advice

Hi Natalia, really pleased you found your way to this group and hope our experiences can be of some help and comfort to you.

As you’ve had an ultrasound already I imagine your next scan will be a CT scan - and I know in my case this provided much more detail for my consultant, and therefore much more clarity for me about the problem and next steps. If you’ve never had a CT scan before, it’s not too scary and doesn’t take long - Hopefully you won’t have to wait too long for your appointments either.

I know it’s hard meanwhile not to worry and fear the worst, with so many unknowns at this stage, but in terms of your raised CA125 levels, this really can happen for a lot of reasons that aren’t cancer related.

Wishing you all the best, and it would be great to hear how you get on if you post again to this group.

B xx

Hi B.positive, thank you for your answer

I've been told that I'm going ot have another scan In 6 weeks time and after that appointment with gyneacology. I do not really understand why they are not rechecking my CA125 again? Is it a normal process? Feel completely lost....

Hi Natalia,

I’d guess that the reason for the second scan could be because of your borderline result - or maybe it’s a different type of scan your medical team want you to have, to help them decide on next steps. In terms of that though, and also the rechecking of your CA125 level, probably the best people to check with would be your  medical team directly, or your Macmillan nurse if you’ve been assigned one. If not, the Macmillan helpline would I’m sure be able to give you guidance on what the normal next steps might be. 

Sorry I can’t be of more help but, as my case wasn’t borderline and things moved pretty fast for me, I really hope that the slower and thorough approach your medical team are taking proves to be a good sign for you.

All the best, and keep in touch anytime,

B xx