I was recently diagnosed with rare form of ovarian cancer called a Sertoli-Leydig Cell Tumour which accounts for less than 0.5% of all malignant tumours and is not detected on a CA125 blood test. I had a unilateral oophorectomy in May and the tumour was 1C, awaiting CT scan in 4 weeks. I am eager to find more information or maybe other patients like me. It’s the first case for my Gynaecologist & Oncologist so their knowledge and experience is limited, which increases my worry-meter. Any insight or familiar situations would be hugely appreciated.
