ET Side Effects

Hello AJP57,

I have MF and the Jak2 mutation. Fatigue, bone pain, night sweats are symptoms of the disease. Ruxolitinib (Jakafi) helps to ease these symptoms.

Naugus

Hi AJP57  my dad has ET, and I would say it is a bit of both. When my dad first started on the medication the fatigue got really troublesome for him, but after the first year it did seem to settle down a bit. I have noticed he is much more active now, and at 78 he makes sure he goes on the treadmill for an hour every day. 

I think the best advice would be to listen to your body. Rest when you need to. It took my dad a long time to realise this, as he wasn’t one for napping during the day, but he will do that now if he needs to. 

Hi there.  I have ET and am on hydroxycarbamide. I’ve been told it’s mainly the disease but the medication also has an impact. I also found that I got other side effects that came and then went (mouth ulcers, peripheral neuropathy), and now I have issues with my gums. Fatigue is the main one though.  I hope you get lots of support from your specialist nurse and medical team.  Others here will have good advice. Wishing you all the best.   Skaro