Polycthemia Vera

Hi MrsW86, so sorry to hear of your diagnosis of PV, to be told you have a blood cancer is quite a shock and it's totally understandable to feel the way you do. 

I also have a blood cancer, MDS, but my problem is too few red cells and lately, low on neutrophils too which is quite the opposite of PV. I also have haemachromatosis and for that, I was having venesections weekly until I collapsed one night as my body wasn't replacing the red cells because unknowingly I had MDS. That was also a very big shock as you can well imagine and I didn't know which way to turn.

I was also advised to stop working which wasn't so easy because I was self employed and I had a guy working for me who had 3 young girls. However 4 months later I began to get sciatic pain and 4 months after that the pain was so bad that I was given a wheelchair by my surgery which helped massively. It's all in my profile if you want to read it by clicking on my username. I noticed you haven't filled in your profile yet, MrsW86

I really feel for you Mrs W86, having 2 of 3 children having special needs. Maybe if you stopped working you'd have more time to focus on them? I can't of course answer that, I don't know your situation financially.

I hope you'll be chatting with us for years to come.

Take care and stay safe Mrs W86 

Tvman x

Thanks for your reply I’m sorry to read about what your going through. I have updated my profile with as much as I can I just feel so empty and at a loss of my next steps.

MrsW86, I'm sure you sre running on empty. Just keep calm and some things will get a bit easier

Take care and stay safe Mrs W86

Tvman x