Hi ! I had my second infusion of chop chemo yesterday on the way I couldnt stop shaking and felt really cold and later couldn't stop sneezing anybody else had this please .I'm a 76 year old female nearly 77 I've also lost so much weight I didn't need too in was already slight .thank you.
Hi Manuka and a very warm welcome to this corner of the Community but I am sorry to see you joining us.
I am Mike and I help out around our various Lymphoma groups.
For context I have been on my Lymphoma journey for over 26 years first diagnosed way back in 1999 at 43……. when my first rare (8 in a million) ‘incurable’ but treatable slow growing Low-Grade Cutaneous T-Cell Non Hodgkin’s Lymphoma (NHL) was found.
I eventually reached Stage 4a in Oct 2013 when a second, also rare (4 in a million) type of very aggressive High-Grade Peripheral T-Cell NHL was then presenting so although my Lymphoma ‘type’ may be different I most definitely appreciate the challenges of this journey rather well.
on the way I couldnt stop shaking and felt really cold
later couldn't stop sneezing
I had 6 cycles of R-EPOCH between Dec 2013 to April 2014…. CHOP is basically the same drugs as my R-EPOCH but had the addition of other very strong drugs to make the treatment very aggressive.
My chemo had me in Hospital for the 6 cycles….. each cycle required me to be connected to my 2 IV pumps 24/7 for 5 nights/6 days at a time for over 120hrs….. but the treatment did what it needed to do.
Although I needed other treatments I am now 10 years 8 months out from my last treatment, turned 70 last Nov and getting on with life.
also lost so much weight
I lost 27kgs over my treatments, but I had the extra that it made no significant difference but as the weight keep going down I was seen by a Dietitian who put me on a high protein diet.
Do talk this through with your team as they can get you to see a Dietitian to get advice….
Where do you live Manuka ?
Any questions just ask… ((he gs))
You need to check with your clinical team if it’s ok to take some antihistamines incase your are actually suffering from hay fever.
Have you lost your hair?
I found that I was more cold even during the summer….. chemotherapy can temporarily thin our blood resulting feeling more cold.
The big fish fingers sound great.
So there is a good chance that you have lost the hair inside your nose - this leads to a regular runny nose.
You can go in past your local pharmacy and talk with the pharmacist as they may be able to help you out.
Yes I am doing great…. Living life to the full.
