Non Hodgkin's lymphoma

Hi again Percytheparkkeeper and well done finding your way over to this group. 

I did not introduce myself in your other post, I am Mike and I help out around our various Lymphoma groups. I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low-grade non-Hodgkin lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ may be different from your I do appreciate the challenges of this journey rather well.

I can understand the anger and impatience you are experiencing...... being diagnosed with NHL then navigating a treatment journey can be very challenging. I have had a barrowload of treatments over my time.... some very full on and I think I could have become angry and definitely lost my patience as it took over 17 years before we found a treatment that got me into remission that lasted more than 9 months at the longest (See my story).... but I was able to control my emotions and turned any anger I had against the unwanted guest that had taken residence in my body...... and focused on the good that was waiting for me as I moved forward.

You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones..... I often have a read though the paper to remind me that the post treatment journey is a process that can take time..... but it does improve with time.

Thank you Mike you have certainly been through it and continue with your fight.my name is Steve and thanks for the advice and I will read the pamphlet

Always good to have a name Steve.