Non Hodgkin's lymphoma

Hi Gypsy rover and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our various Lymphoma groups.

I was diagnosed in 1999 with a rare, incurable but treatable type of Skin NHL Stage 4a so know the treatment journey rather well unfortunately.

I see from your profile you have had a rough time and so sorry to see you lost your mum. Well done getting through your treatment and you now find yourself navigating the post treatment life.

Many are left with post treatment ‘left overs’ and it takes time to fully recover but you have found a safe place to talk with others who have the ‘T’ shirt……..You can obviously see our stories by hitting our community names.

Always around to chat and support as best as I can.

Hi and welcome to the site, if you share the type of NHL others who have had a similar experience will share their stories.

I had dlbc back in 2009 and after 8 rounds of rchop have been in remission and am now classed as cured.

regards

john

The Highlander. With a name like that I hope you're Scottish..lol Was a tough journey & I do believe only people who have had cancer chemo or radiotherapy can understand what we actually go through , like an estranged friend of mine knows exactly what Im going through or went through , she has know Idea , as I said im glad I stuck it out if not I wouldn't be here today , couldn't do that to my boys , it's the pain im in at the moment from neck to toe , im putting that down to post chemo as im scared to say to my gp or physio , as it was in my head , defo wasn't , it was real and I won the battle

That is fab news , great to hear that , you must be 1 very chuffed man , let's hope I can get there without anymore bumps in the road as the Dr called it , as I was in denial/it was a horrible dream & I'd wake up , never happened,.. my nurse said , think on it as every bag you get is a chemo bag get home to your boys sooner , which helped , as my son's are my life

Hi Jean Gypsy rover I sure am Scottish and live way up in Inverness in the Highlands.

Yes unless you have actually been on the cancer ride, most people just don't understand and con only relate to their 'worst' illness they have had.

The treatment journey is truly a day at a time. My wise Specialist Cancer Nurse told me in the early days “Mike there are two days in every week you can’t worry about - Yesterday & Tomorrow. You can’t change what happened yesterday and can’t control what will happen tomorrow so live for today, tomorrow will take care of itself” and I found her words to be so true ((hugs))

I like your nurses way of thinking , I'll try putting that into practice , my psychologist tried the every chemo bag is a bump in the road & if you want on the smooth road you'll have to ride the bumps out , I got there in the end but it was my nurses way of thinking , every bag finished is a bag nearer to going home to your boys , I'm here , that counts

The road is made lighter by talking with others and this group can help.

I see you have also joined the Life after cancer group as well. I keep an eye on this group, even although I am incurable I like to think that as I am 6 years put from treatment I am living in hope that I am living my life after cancer......

Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area. Maggie's run Heamatology Support Groups and our one up in the Highlands is great.

Do also check out Lymphoma Action, a small but very active UK Lymphoma Specific Charity who have lots of good information, videos and run regular regional online Lymphoma support groups and indeed a very great Lymphoma Buddy Service......((hugs))