NHL

Hi Rich64 and welcome to our corner of the Community and sorry to hear your diagnosis.

I am Mike Thehighlander and I help out around our blood cancer groups.

It takes time to get all the information together to move this forward. Do you know the exact type of NHL you have?..... this always helps connect you with others.

On the whole NHL is very treatable with good results.

In way of some encouragement. I was diagnosed in 1999 with a rather rare and difficult to treat Stage 4a Low Grade Cutaneous T-Cell (skin) Non Hodgkin’s Lymphoma. I was told “Mike, I am sorry to tell you that this type of NHL is incurable, yes treatable but you will never be in remission”...... but after years of various treatments in September 2016 I was told I was in remission for the first time in 17 years - and I am living the dream...... and eventually you will as well.

Keep posting as we are here to help.

Hi Rich64,

I’m in a very similar position as yourself. I’ve been diagnosed with diffuse B cell.  Came as a complete shock, I’m a healthy 50 yr old, 30 + yr vegetarian, never smoked, drink moderately, average weight! Had my pet scan on Tuesday to stage it and I go back to the haematologist next Wednesday to sort out a treatment plan.  I’ve been told it’s R-CHOP chemo for me.

All very shocking but we can get through it. Nice to meet you so to speak! Take care, Sarah 

Thanks for posting its good to hear from others in the same situation. I'm still waiting on PET Scan too so will update as soon as I know. Funnily enough mine was Tuesday also! Good luck and will catch up soon 

Just out of curiosity, did you have symptoms prior to your diagnosis? Mine was discovered in the tissue pathology following gyne surgery to remove ovaries. It was a complete shock as felt well and was active.  I was a bit tired but I’ve always been like that, so no change. The past three weeks though I’ve got swollen lymph nodes, one under my jaw and one in the groin area which are slowly getting larger which isn’t particularly pleasant!

Let me know how you get on, sending positive vibes your way.

Funny you've asked that... I had a shoulder strain and went to my osteopath for help with it when she noticed an abnormal lump in my neck. She flagged it up and got me a referral straight away, I was lucky as she used to be a skin cancer nurse. I would never have noticed tbh but like you have another in armpit and one in groin area. I do feel tired some days but just thought it was work really as do 10/11 hour days. Just be glad to get final results from scan! Hope all goes well for you too and sending good wishes your way too.

Hi Rich64, 

Sorry to hear your news.

Looks like a few of us here are like buses, all coming along on this exclusive little lane at the same time to navigate the start of this unexpected little road.

I've got my first PET CT scan on Wednesday and I'm dreading the cannula! I think 'm going to have to get my big girl pants out and get used to needles :-)

Anyway, it feels a bit less lonely to know other people are going through a similar experience at the same time, so it would be good to hear how you and everyone else is getting along.

Best wishes 

Gail

Hi Gail

Don't worry about the canula they are really good at this and its over in secs. Thanks so much for posting too, as you say it would seem there's a small group of us entering this situation at the same time. Good luck with the scan and I will post any news as and when. All the best

Rich

Cannula’s...... I honestly I think I could do them myself with the amount I have had over my 22 years problem is I only have two hands and would be rather occupied.

I was so used to them and the team knew me so well they would always bring the student medics to me to practice there were a few I had to talk then through it as they were SO nervous, I would get them to sit down, we would talk about where they came from, their hobbies and before you knew it it was in

Oh my god you are nails! I'm going to have to get used to needles and toughen the heck up! My yorkshire grit reputation is at stake here! :-)

Your up against a Highlander that drinks IronBru - makes us like steel girders