does any one else have this, and how long have you had it,and how are you doing,I was diagnosed with this on the 5th july 2010 and i am reasonably fine,am tired quite a bit but other than that am ok,i just find it a bit of a strange cancer because they cant do anything for you until you show other symptoms,also it is possible it may never need treatment,but they say you have cancer.
Hi and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here.
This thread is coming up to 5 years old so this person may not now be on the Community now but let’s see.
The BEST WAY to get support is to join the NHL group and hit the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and Introduce yourself to the group and folks will get back to you.
If watch and wait is suggested for you, it means it is in your best interests to keep an eye on your lymphoma and to save other treatments for when they are needed. There is lots of evidence that people do just as well in the long term if they are actively monitored and have other treatments kept until they are really needed......... I was basically on W&W for 14 years before my main treatment started.
t is worth putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself.
To do this click on YOUR username, look to the left and select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - REMEMBER hit the big green SAVE before you leave the page. If you're not sure what to write you can take a look at any members profiles by clicking on their username
