Worried about telling my family...

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Hi all... it's been a while since I was here, but I needed to put my words somewhere as some things have been happening and I'm finding it hard to say anything to my family as I've already put them through one cancer diagnosis and treatment, plus it's coming up to a year since my brother passed away from cancer..

Long story short..a mass has been found near my heart. It was found by accident as I was being checked for any reoccurrence of cancer in my groin area as I had some pain and irritation, similar to before..

I've been having problems recently in that area, like muscle and chest pains, being tired and so on..I'm doing my best to keep these symptoms under cover as I am worried about upsetting everyone...only my dog knows..

I'm going back to hospital soon for another checkup, so I will say something to the Doc then..

I just want to get all this off my chest... literally

️thanks for your timeHeart️

  • Sorry to hear this  I can totally understand the challenges of keeping your family safe.

    So from reading your post you don’t actually know what this mass is?

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi HighlanderGrin

    It was while I was getting my CT scan for my spine and the original area where my lymphoma was. They discovered a mass, at the time 1.6cm in size near my heart. They thought it might be a blood clot, so I went for an ultrasound. Happy to say it wasn't so, the mass is still there. 

    I will be getting a CT again soon to see if it's got bigger and what to do next...

    I haven't said anything to my family about he pain I've been getting as I don't want them to worry.. Thumbsup

  • ok….. let’s look for this to have a simple answer.

    Following my second Allo SCT a scan (Jan 2016) picked up a new mass on my lung….. it was checked out and found not to be anything to worry about….. 9 years on its still there and has not been an issue.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • In my life there is no simple answer, but thank you for tryingGrin

    My brother died around this time last year from cancer...he was the last person I expected to have it. So I'm just worried I'm putting too much on everyone. They know about the mass, just not the other things..

    I just needed somewhere to say it...thanks for listening Thumbsup

  • Very sorry to hear of this. A true statement is that it is not cancer until a pathology report says it is cancer. For the time being, it is a mass and little more is known about it, except what it is not. As you noted, there is some comfort in that. At this point, I see no need to tell anyone else about your symptoms, as that will only lead them them worrying as well. There is so much unknown. We seem to have little choice but to carry on with life, keeping as busy as we can. We each turn to our coping mechanisms at such times.

    ______________________________________________________________________
    One cancer (PTCL-NOS) 3 times. Two other cancers: Angioimmunoblastic T-Cell Lymphoma 2 times, and 20q deletion MyeloDysplastic Syndrome) were chemo refractory. All three cancers simultaneously in 2015. Stage IV twice + MDS @ 23% of marrow. 12/22 diagnosed with Squamous Cell Carcinoma. Thus far, 14+ years, 20 drugs, 4 clinical trials, Total Body Irradiation, 1,000+ years of background radiation from scans. 7th remission so far. Haploidentical stem cell transplant, acute > chronic Graft-versus-Host-disease. Currently receiving my 7th GvHD regimen.

  • Hi...

    That is mind boggling what you've had..but glad you're still around to see another day...

    Yes you're right, I should keep my other symptoms to myself other than talking to the Doc about it. My brother's passing is still raw despite us not being close and I didn't want to add to that?

    Compared to the rest of my family my cancer is not as bad, but it still causes an impact...Thumbsup

  • May your brother rest in peace! It seems like sorrow is added to sorrow, yet we are resilient creatures and hope drives us on. Alcoholics Anonymous teaches "One Day At A Time" and that is good advice for all of us.  

    ______________________________________________________________________
    One cancer (PTCL-NOS) 3 times. Two other cancers: Angioimmunoblastic T-Cell Lymphoma 2 times, and 20q deletion MyeloDysplastic Syndrome) were chemo refractory. All three cancers simultaneously in 2015. Stage IV twice + MDS @ 23% of marrow. 12/22 diagnosed with Squamous Cell Carcinoma. Thus far, 14+ years, 20 drugs, 4 clinical trials, Total Body Irradiation, 1,000+ years of background radiation from scans. 7th remission so far. Haploidentical stem cell transplant, acute > chronic Graft-versus-Host-disease. Currently receiving my 7th GvHD regimen.