Me & my cure

Happy new year to you too, Gypsy rover. Good that you are in contact with the haematology team, but it sounds like you may want a referral to deal with the specific issues. At one point on chemo I had bad skin issues and was referred to a dermatologist who was able to help. In your case, possibly a neurologist, or another specialty? The cancer team will be best positioned to say if that is what is flaring up, but when it comes to side effects, the people who specialise specifically in each of these may be of more help. I'd say perhaps this is worth exploring. 

Hi Gypsy rover, the post treatment ‘left overs’ for some can unfortunately be significant. As I have said before I was only 3 weeks bedridden and it put me in a wheelchair and it took a good few months very hard work to get up and walking and a further 18 months to get to the point I could say the pain was gone and I stopped all my pain meds.  

16 weeks in bed will have a massive effect on your body and this is going to take time and perseverance to get through this. You need to have a good talk with your clinical team looking for a clear plan to move this forward. You are stressed and this in itself will bring medical challenges. 

It’s good that you are getting checked out and let’s look for answers and a plan to help you through this ((hugs))

Happy New Year to you and your family , I've been having odd sensations on my right leg from hip - knee consultant knows about it , but over Christmas it got worse & there was a bit that I could say was localised to a certain area , I called Haematology & they put me back in contact with Dr Clarke , she wants to cover all areas & make sure nothing else has happened so I just got a phone call , going for a PET Scan this Friday and fingers crossed it's nothing to worry about & it's just a feeling I'm getting , but otherwise I'm good , still weak , movement is still sore at times , but enjoyed christmas and again New Year as I got my boys home for a couple of days each time.. Gary went home on Monday he was missing his Xbox.. , Andrew wanted to stay with his mum so he went back yesterday afternoon , now I'm knackered so going to enjoy a good rest... just wish people would stop saying & looking at me as a fraud , because I'm out of hospital doesn't make me ok as I' still got my recovery period , I hope you didn't have that, or I just seem to know not really nice carefully thoughtful consideration people.. maybe this year is the year to me new people & avoid covid at the same time , there's a challenge....

Great that you you had a good time with your boys and after having our 4 granddaughters together for 4 days we were totally done.

Is that the Dr Clarke with the ‘eyes’?

I never paid attention to what people thought, or what I thought they thought but was brutally honest when I got the “you look great” line.

Lets look for your scan not to show anything and a way forward for you to be found.

Thank you , I enjoy talking to you , as you've been through this and it's nice talking to someone who has instead of others who haven't saying I totally understand how you feel , ehh.. no they don't, they haven't got a clue what we went through , I just wish there was more people that had the same as me , just so I could see how our chemo journey differs.. I suppose in time I might find some , 

...... so is it Dr Clarke with the 'eyes'? 

Mmmm , she's a lovely dr , not sure about the eyes as I'm a woman so don't notice these things , but could say if it is the same dr she's English , being honest I like her better than dr Patrick , she's got a listening ear & takes time with you , 

......so not the Dr Clarke I was seeing as He is a He 

Looks like I got the better deal , well hoping anyway , my appointment was for Tuesday at 9am. Said I couldn't manage that , they've changed it to this Friday at 1.15 , much better time ....

Good you got an appointment that is better for you...... do have a look in at Maggie's also.