Non-Hodgkins B cell Pleural Effusion

Hi again , I personally have not had any Pleural Effusion problems but there have been a few folks post about this over the years so let’s see if they are still looking into the community.

There are few folks have been on Obinutuzumab (Gazyva) and did ok with it. You can put Obinutuzumab into the search tool near the top, hit ‘anywhere’ and have a look at the older posts ((posts))

Thank you again! 

Hi kathy

I was diagnosed on December 12th  last year Follicular b cell NHL and a separate 13cm kidney tumour unbelievably not connected to each other

I like your partner suffered bilateral pleural effusions and it had a devastating effect on my ability to breathe and function normally

Keep a close eye on heart rate as it caused me to go into atrial fibrillation as well 

I had 2 litres removed from each side and its life changing when they do it, horrible but life saving 

I had to suffer this four times in total and it was non malignant lymphocytic fluid like a thick yellow treacle so in total I had 16 litres drained over 8 weeks and each time it took about 10 days to come back

The good news is once they stuck me on prednisolone for 2 weeks and then blasted me with rituximab for 4 weeks its never returned since April so there is hope for a good outcome 

The treatment allowed them time to remove my kidney on April 22nd and having recovered from that I started chemo yesterday on r-chop thank god its felt like an eternity to treat the lymphoma 

Keep strong and keep fighting 

Hi,

thank you for sharing your story with me.I'm so glad you're not suffering from the pleural effusion anymore and had your kidney removed and you've gotten all over relief. Yes this is a harrowing road.  My partner has the effusions in one lung and has had .8-2 liters weekly for the last few months. He's on Gazyva which is the next generation of the Rituxan. Hopefully it will subside or he'll get some radiation for that spot. 

Be well,

Kathy