Good morning. I’ve not posted for a few months although I have visited the site. Still trying to sort my way around the upgrade. I’m not very tech minded. The reason for no posts is that I have been in limbo and feeling very very low. After my initial diagnosis of Lymphoma, the world went mad. I was advised to shield and I’m still shielding. My consultant felt it was unsafe for me to attend the hospital for a scan and so I waited for 5 months until scan could be done. I’ve been in bits just waiting and not knowing what’s going on in my body. Thankfully the scan was done 2 weeks ago and I will get my results on the 8th September. Until I know what I’m dealing with, my life is on hold. I feel like I’ve been hit with a double whammy- Lymphoma and COVID-19. Always thought that I was a strong person but I am so scared right now. How have you all coped with the pandemic and the worry of contracting it? Best wishes to all Teresa x
Hi Teresa, yes we are all learning how to navigate the new site and some fixes are on going...... it’s rather like an NHL diagnosis. It just takes time, a lot of frustration and stress but you will get there and a plan will be put together.
My lockdown started on 15 March and stayed in my house/garden for 99 days so on 24 June we went out for a run in the car, took a flask and sat beside Loch Ness with not a person in sight.
We have slowly been getting out, looking for ‘safe’ places to go even been out for a few meals and until Wednesday they had all been outside. But I have to say where we went on Wednesday was very well set up and we did feel very safe.
It’s all about assessing risk, COVID is not going away for a long time but having spent many years fighting to get into remission I am not going to let COVID define me.
Following Stem Cell Transplant I am as much danger from things like Mumps, measles as I am from COVID as my SCT killed off my immunity and I am still around coming up to 5 years post treatment and doing great.
Let’s look for a positive direction to be found to move this forward.
Mike ((hugs))
Don't let fear rule your life, just be carful.
