A warm welcome to all those who have joined us over the past two COVID19 lockdown month.
We are so sorry that you had to find us but you have found a supportive place where we all understand what this blood cancer journey is like.
We have a wide range of first hand life experience and all help is important when navigating a blood cancer journey.
During these challenging times you may find connecting with folks who have walked the walk very helpful.
If you have any questions or just want to talk with someone just hit the 'Start a Discussion' tab and introduce yourself to the group and remember to go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.
If you have not done this, it would be really useful if you could put some information in your profile as this will help others when replying to you. so Click to see how to add some details to your profile
Have a look through our various Macmillan Support Line Services then call them on 0808 808 00 00 to be very helpful covering Emotional Support and Practical Information. Clinical Information and Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link….. but be aware the service is VERY busy at the moment.
We are always around to help as best as we can.
Hi Lisa, sorry to hear about the issues you are experiencing. Lymph nodes react for many many reasons and the positive is it’s mostly down to other reasons rather than cancer.
You need to work with your GP to get answers, Lymphoma as a cancer is very complicated, difficult to diagnose and it’s rather unusual to develop for another cancer.
A simple Google search using some of your issues will indeed hit on a blood cancer but looking further it could be lots of other reasons.
((hugs))
Mike
Lisa, if and I say a big IF this was one of the 60 types of Lymphoma a few weeks even months would not make any difference in the long run. It took a year for my rare type of NHL to be diagnosed.
This may sound very simple but until you are told different, you don’t have Lymphoma.
Remeber that lymph nodes are very reactive and will react badly to stress and worry so as you can’t actually change anything do your best to park the negative thoughts and look at the positives from the past few years.
Mike
Lisa, there is always a chance of another cancer coming along as our bodies ability to fight will have been reduced ever so slightly.
Intact I have been told that I have a very high chance of developing skin cancer due to the 16 years of skin treatment I have had...... but if or when it comes along I will just deal with it the same as I have done for over 21 years. But there is no chance I will let it define me.
No point making any wild guesses, run with the tests and see what comes along.
Mike
