Hi, can anyone help? I've been reading through the latest release about the highly vulnerable group and I'm not sure if I'm going to fit into it. My last cycle of chemo finished on 6th January, and then my radiotherapy finished last week, on the 13th. I've finished treatment completely now. Does that mean I do or don't fit into the group?
Does anyone have some advice? Thanks in advance.
Hi and welcome to our corner of the Community.
Yes, this is all very confusing and I would always recommend talking with your team as every NHL case is individual.
this advice from the government is encompassing and is a good guide what to look out for and what you should or should not do and Macmillan have also provided some information and answered some key questions around cancer and coronavirus (COVID-19).
This link takes you to the most up to date Bloodwise information about the Coronavirus.
The fact that you are not long finished treatment would say that you are in the "at increased risk" category for social distancing but you will also find blood cancer at any stage of treatment puts you in the "High Risk of server illness"
I was diagnosed in 1999 with a rare type of Skin NHL and if you hit my Community name you will see I also have Asbestosis. i am now over 4 1/2 years post my second Allo Stem Cell Transplant, in remission and even a few weeks back my Late Effects Nurse said “……you need to think that you have just come through your Allo SCT again and take exactly the same precautions as you did then........” so I am basically back into a three+ months isolation controlling everyone I come in contract with and where and what I do.
She also said ”……. once a blood cancer patient always a blood cancer patient"......... "All the treatment you have had has indeed had a long lasting effect on the effectiveness of your immune system even although your bloods are ok with a few at the lower limit range of acceptable, like any virus you are at risk but this one we don’t know how a post Allo SCT Patient will react - let’s be safe and not sorry”
Not much help for you - sorry. But this virus can not be underestimated - talk with your team.
