Hi,
I’m new to this group and macmillan community. At only 27 years old I think I’m still in denial that all this is really going on. I was diagnosed with NHL back in middle of September. After having a cough for over a month they discovered a tumour in my right lung. It’s been a whirlwind of treatments (of which I’ve had quite severe reactions to.)
I have a CT scan next week, the routine post 4th round of chemo check-up, and I’m nervous about the results. I was wondering about other people’s experiences after this review; good and bad.
Having a tumour in my lung, I don’t get to see how it’s shrunk or changed, this scan is the first time I’ll find out how my treatment is fairing. Just looking for a little reassurance really.
K xx
Hi and welcome to the Online Community, although I am sorry to see you finding us.
I am Mike Thehighlander and I help our around our various NHL forums. Am I correct in thinking that you did not have a scan as part of your diagnosis as this would be compared with the mid treatment scan........ but your team will have a good understanding what they will be looking for, from my 20 years living with and being treated for my rare type of NHL these treatments are very effective so expect things to be good.......but if there are any issues there are lots of tools in the Heamatology’s tool box to deal with it.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.
Always around time help out.
Hi K
I also had a bad cough last year and my GP sent me for an X-ray and by the time I got home my GP was on the phone.
Turned out there was a shadow on my lung. Turned out to be cancer but also on my liver,breastbone , under my heart
and all round my rib cage. On my first scan the lung,liver and heart cancers were gone. 6 rounds of Rchop and two
large methotrexate there was no sign any cancer so go for it and I hope things work out well for you.
look at my profile
Trev
Hi Kirsty, just sending some virtual hugs your way! Well done for getting really close to the finishing line and sorry to hear that it's taken a toll on your relationship. There are well-being (mental health self referral) services or councelling through MacMillan, depending on what area/hospital you're having treatment in.
I've suffered with anxiety in the past and am borderline depressed at the moment and it really helps to talk. I set up a private Facebook group about my journey with NHL which keeps all my friends informed and provides me with support.
Hoping for a good pet scan results so you can move on in remission
Regards, Lynda xx
Hi Kirsty, just sending some virtual hugs your way! Well done for getting really close to the finishing line and sorry to hear that it's taken a toll on your relationship. There are well-being (mental health self referral) services or councelling through MacMillan, depending on what area/hospital you're having treatment in.
I've suffered with anxiety in the past and am borderline depressed at the moment and it really helps to talk. I set up a private Facebook group about my journey with NHL which keeps all my friends informed and provides me with support.
Hoping for a good pet scan results so you can move on in remission
Regards, Lynda xx
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