Possible lymphoma or something else?

Hi Laura,

Some great advise coming your way.

Unfortunately, for some folks it’s all about persistence and getting your pointy elbows into the medical system’s doors.

I was very fortunate in that I had a very good relationship with my GP and he was a positive advocate for me to get referrals.

The thing that confuses me is that folks like yourself, with lots of health issues can struggle to get answers when I only had a small rash and got a referral, yes it did take a further 12 months for the pathology to find the answers and get to the bottom of the problem to get a clear diagnosis.

Keep pushing those doors Laura ((hugs))

Thank you. 

I'm quite baffled myself to be honest they keep taking my age into consideration and that I have 2 kids blah blah.  Im so angry and I feel let down by my gp surgery.  I feel totally neglected I've asked for a referral even for piece of mind but nope not concerned enough to refer me.  Are they gonna wait til I'm seriously ill to finally be concerned enough?

I'm happy that your gp was on the ball in referalls etc... If I got the top gp in my practice I reckon I would have been referred months ago but he is always fully booked couldn't get an appointment with him until mid December and that was in September.

Laura 

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So have you actually got a December appointment with the top GP in your practice?...... I would be calling your practice regularly to see if there are any cancellations x

Hi Laura,

apologies for jumping in here, but I’ve read your story and am sorry as it feels as if you’re being let down by the system. Lymphoma is the most common cancer in young people (if Lymphoma it should turn out to be) so I think if I were you, I’d be phoning the ENT consultants secretary, or your GP surgery secretary and saying you are getting worse all the time and before long may well simply need to go to A&E. 

my daughter (aged 26 when diagnosed, you can see my profile by clicking on my name, for more info) took around 2 months, first changing her GP, to get her diagnosis as she needed tests by ENT first before they removed a node as day surgery (my idea as it only needed a short anaesthetic) and 2 weeks after that we had the diagnosis. It did take a further few weeks to see the haematology specialist, then treatment began quite fast. 

hugs xxx

I so understand hun. It is so hard. I think while we have so many symptoms that makes us so tired for such a long time and so many gp visits that say that we are perfectly healthy our family starts to think the same. My husband got fed up with me too. He started work later after dropping kids of at school  came home earlier to do them dinner,  doing the dishwasher and the laundry. But there i was, still moaning about that i needed even more help. I couldnt even wash my own hair. It is difficult for them too to be fair. They don't know how to make you feel better. I felt misunderstood and thought i was depressed. When he heard it was Lymphoma he felt so bad. Worse then i did. I felt relieved. They finally believed me. 

Good luck tomorrow! We will be thinking of you. 

Hi everyone. 

Sorry I've not been on in a while had a lot going on. 

So I've finally got an appointment with the ENT specialist for the 18th of December thank god. 

I had my routine check up with my dentist and I mentioned my nodes which she seemed quite concerned about she wants me to go back to my doctors which I have an appointment today with and she said if they don't refer me for a scan she'll refer when I next see her on Thursday.  I'm so relieved that the ball is finally rolling and hopefully I can finally get answers. All above symptoms are still her nodes are growing and seem to be pushing on my mastoid muscles. Pain in back of my next is still here and seem to get worse at night. But I'm happy to finally be taken serious. I'll update yous all with results. Thanks everyone for all your advice it's much appreciated.

Laura. 

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Hi Laura, good that progress is being made and let’s see this move quickly and get to the bottom of this.

18th December....... this just makes me think back to my 14 years of 4 monthly clinic appointments with my Dermatologist......... he always had me in on the last clinic day before the Christmas holidays...... he was a very clever man but a touch of a ‘humbug humbug’ type at the same time as he would always complain about the hospital clinics being ‘forcefully’ closed and he ‘had’ to take some of his leave

Keep in contact.

Fingers crossed. 

It's one less worry especially with Christmas just around the corner so I'm very happy. 

Hope you're well. 

And thanks for everything. 

I will certainly be back with all the results and probably more advice. 

Laura. 

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I am great Laura and will look out for you coming back with your news ((hugs))

Back again. 

Forgot to mention I've been getting pain in my left collar bone with more swollen lymph nodes. Doctor has referred me for an urgent chest x Ray which I have tomorrow at 4 o'clock. Can chest x rays pick up lymphoma if that's what it is? He also took more bloods and I've to go back and see him next week to decide on where we go from there. I'm not as scared as I was before I'm just wanting answers and to feel better I'm scunnered. Will let you know my results. Do you know roughly how long it takes for results to come back? Hopefully it's not too long a wait.

Regards. 

Laura 

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