Burrkitt lymphoma

Hi, sorry you have had no reply yet here is another thread 

https://community.macmillan.org.uk/cancer_types/non-hodgkin-lymphoma/f/218/p/151809/1158190#1158190

its current and Paul who has commented today had the same lymphoma as your dad, it can be beaten but is one of the most aggressive types of lymphoma and its those that normally respond best to treatment. Only question is are they sure its Burketts as it looks similar to DLBC and it normally takes around a week to get biopsy results back and sometimes 2. 

John 

Hi , and a second welcome to the Online Community but sorry you had to find us.

John has highlighted a good thread to have a look at. A cancer diagnosis is a hard thing to get the head round but we on the forum have all been or are in the same shoes, so lots of first hand expereance to help and support your dad, you and the family.

Blood cancer in the whole is very treatable so once you get some more specific details re staging and proposed treatments please get back to us with the details as we can help out as one of us will have been on the same track.

Any chance you are over in the Fort Wiiliam area?

We are always around to help out.

Hello bennevis, I saw your post and perhaps I can help you. I will if I can. Two other posts from John and highlander are spot on. The treatment is hard and it's a battle that can be won. There are so many things that will go through your head and more so yours mums. Let me know what you need. 

Hi there,

I have battled Burkitt's Lymphoma myself. I was diagnosed in November 2016 and in full remission by May 2017, so been cancer free 10 months now! If you have any questions about treatment plans or what the experience was like I would be happy to answer.

Stay strong!

Dear wait 22. I'm very interested in burketts, I was healing just as you started. I had type B and was in city hospital Nottingham under Andrew macmillan. It was tough and at the same time oddly inspiring. I'm trying to help others where I can, but come across burketts so rarely, until this week!

  Currently suffering from a psychological issue called survivor syndrome. What's your story. 

Thank you everyone for your kind help , He has been on a pre phase treatment for a few days now and has made a great improvement, So much that he is getting home for a couple of days until they have the full results back hoping to be Thursday now , The do not want to start the chemo until they now which type too start 

Hi again , its very important that his team give the correct treatment as the results will be more effective despite him having to wait a little longer.

Always around to help out.

Hi wait22

I was wondering how you are doing. 

My nephew has been diagnosed with Burkitt in April and he’s now undergoing treatment in Belgium. 

How was your treatment and how long for? I’m aware everyone is different but I’d like to know how you tolerated the chemo and ritucimab/ methotrexate. 

Anyway good luck and amazing that you’re in remission! 

Would you be interested in exchanging contact details with my sister or my nephew, seen as he’s not in uk, I’m not sure he or my sister would be able to join this community. 

Hi Auntie Rustler, your sister would be very welcome to join the Online Community as we have folks from all over the world.

It would be good to collect as much info about going through treatment for Burkitts as it opens it up to others in the same position.

Highlander ((hugs))

Aw that would be so helpful for her ! I’ll pass it on to her !