Intrathecal methotrexate

Yes, they do two dozes as prevention There are many side effects, so they keep the patient under observation and hospital stay 

I wish you all the best for your husband to be in full remission soon x

Hi again Mumonamission ....... I have not required Methotrexate but it is used for some types of NHLs as a belt and braces approach to prevent CNS Prophylaxis

There are a few group members who have had this treatment so let's see if they are still looking in......

You may also want to check out Lymphoma Actions various Support Platforms both for patients, caregivers, family and friends as this will widen the group of people you can connect with ((hugs))

Thanks Ghaz

Wishing you all the best as well

Thanks as always Thehighlander, appreciate your replies and information.

Hope you’re doing ok?

I am doing just great 

Hi there 

I have had the methotrexate treatment and like a previous poster said there can be some complications with the treatment therefore you are very carefully monitored over a few days. Luckily I was fine on the treatment apart from severe diarrhoea which is one of the side effects. The methotrexate is administered through a picc line in my case in the arm it is put through very slowly over several hours and then flushed out with several bags of fluid very rapidly again over several hours which inevitably leads too lots of trips to the bathroom,which obviously leads to lack of sleep so you become very tired. 

I hope this helps a little.  Thankfully I’m now in remission, and hopefully in February will be 2 years clear from NHL. 

Wishing your husband well. 
Andrea

Hi Andrea

i really appreciate you taking the time to let me know about your experience. My husband didn’t know what to expect, although I’m sure he would have been told.

He had a PICC line put in after his 2nd cycle of R-chop and he’s so glad he had that done.

We are just waiting to hear about a date for his PET scan to see how the chemo has been working.

That is wonderful news to hear that you are in remission.

Thank you again

best wishes

I had intrathecal methotrexate given at the conclusion of a spinal fluid aspiration. Just a single injection "just in case." I recall zero side effects. Even with side effects, it is not a long-term proposition. He will be carefully watched, so not to worry.

Hi again 

I should have explained that my lump was found in the breast which is why I had to have the methotrexate infusions. I was originally told the infusions would be administered through the spine but when I met with the specialist a couple of weeks before the infusions I was told it would be done through the Picc line and that I would be in hospital for a number of days which was quite a shock. So I don’t know if my original doctor didn’t tell me the correct information or that this is the way that a Lymphoma found in the breast is treated and therefore different from a Lymphoma found in the testicle. I hope that makes sense. 

Andrea 

Thank you  

It is very hard not to worry isn’t it, but worrying doesn’t do anyone any good.

My husband has had 2 lots of the intrathecal methotrexate after spinal fluid aspiration so far, the day after receiving his 2nd and 3rd R-chop chemo. Luckily he has had no side effects. But his dr has said he will need 2 lots of hospital admissions at the end of his 6th cycle.

all the best