Dad has stopped chemo

Hi Fakenamebob and welcome to this corner of the Community although I am always sorry to see folks joining us and sorry to hear about your dad. I am Mike and I help out around our various Lymphoma groups.

This is such a challenging and stressful time for you all and I can only imagine how difficult this can be.

I personally have no experience in this as so far my treatment has worked and at this point in time I am not aware of any NHL group members (patients or family) who are navigating where your dad is on his journey.

But it would be good for you to connect with others dealing with this regardless the actual type of cancer…… so can I recommend you join and post in our general Carers only and Supporting someone with incurable cancer support groups where you will connect with others dealing with the same challenges while supporting family during these difficult times.

I did find these links on the Lymphoma Action website Lymphoma and the end of life and palliative care….. these link may be able to unpack some of what to expect.

The Macmillan Support Line is open from 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 where you can talk with someone about specific cancer and practical information, get emotional support, benefits/financial guidance or just connect with a listening ear. 

We also have our Ask an Expert section but do allow a few working days for a reply.

Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.

Please do get back to me if you need further help or just want to chat ((hugs))

Sorry to hear about your dad. I lost my 41 year husband to NHL in November he had been fighting it. For 15 months had CAR-T therapy but unfortunately it failed they gave him days to weeks he passed away 2 weeks later.

My husband lost his mobility quite quickly but he did have sepsis and obviously CAR-T so that wouldn't have helped. He did get confused but this was only when he was tired.  Other than that he was fine.

All I can say is make as many memories as you can and talk even when he is the near the end as he can still hear you. In the last few hours my husband couldn't talk and got very agitated which is normal so I spoke to him and played his and my daughters favourite songs and he made little noises so I know he could hear them.

My thoughts are with you all, it is such a cruel disease, but I'm so proud of my husband he couldn't have fought any harder than he did.

Hi  Dru and I am so sorry to read about your husband, my sincere condolences to you and your family ((hugs))

Thank you! As you can imagine an incredibly tough time for us all at the moment.